Thank you Charm for your kind words (will certainly keep it between you and I!)

Jo has been through all the tests barium swallow etc. etc. but with the same prognosis each time. However, after her last procedure her doctor spoke to her and again she was told that this was how it was going to be. She was so upset at first, as she did think there might be some light at the end of the tunnel, but this was not to be. She came across yesterday evening and seemed much more at peace and spoke of how she must accept that this was how it was going to be...There was even a little bit of the old sparkle in her eyes and June being the strawberry season in England we had some strawberries in and she just, got the taste, which she said was wonderful, and when she had finished just spit the residue into a tissue and rinsed her mouth...it was so good to see her doing that. She did the same with some fresh boiled ham we had just cooked....and when I made a cup of tea I made one for her along with everyone else and she just washed her mouth out with it and the taste made her feel good...So I am sure she feels so grateful that at this moment in time she still has her taste. Also she has now been given a mask to wear at night for her Rx induced sleep apnoea... I did try to get her to write something to you folks while she was here but she would not...I will keep encouraging her to do so without becoming a pain in the backside and hope that it will not be too long before she will as I am aware that even just a little thing someone writes or contributes can help someone else on the forum and just might make a difference to someone's life.
Will print out Nil by Mouth/The way to one's heart is thru the stomach. Roger Ebert and all he folk who get in touch are such remarkable and wonderful people.

Thanks to all
God Bless
Kathiex

Kathiex


sister diagnosed June 2010 back of tongue 30 intensive RT and 2 chemo (will confirm what stage later) finished treatment Sept 2010. Peg dependent unable to swallow. 6 teeth removed prior to treatment. HPV?