 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Im so sorry your sister is having so many problems after treatment. It must be terrible to watch her behave like this!
To me it sounds as if she has developed some sort of psychological disorder similar to people who wash their hands 200 times per day. She needs a professional to help her thru this. I would think that anxiety medication would help to calm her nerves so she can get a handle of the constant rinsing and spitting. Those medications can take weeks before they build up levels in her body to work.
I wish your sister would become a member of OCF. It would be helpful just knowing she isnt alone with her problems. We are all patients, caregivers and/or survivors who have all struggled at one point or another with treatments or the after effects. Best wishes to both of you.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
