Senior Member (100+ posts) Joined: Sep 2009 Posts: 177 | Hi Will, I am a recovoring addict also. The pain managment was very scary and some days I wasn't as honest as I should have been. Two things helped me. I continued to talk about how much I was taking, I kept in contact with my support group/people sponsors, fellow addicts and supportive friends. I then went to a pain managment clinic and worked with the people there. I had a lot of pain in my tongue and I also had/have neck pain and issues since all this started. I didn't fully get off all the pain meds for quite awhile. Just keep being honest and keep people informed. As soon as you keep it a secret I think its going to cause the most damage. I think the best thing was I didn't want to lose all I had as a result of this horrible desease. The pain managment clinic was great.
Wendy 46yrs@ DX 9/16/09 T1N0 SCC of leftlat tongue, poorly differentiated.Partial glosectomy 10/01/09 & 10/16/09 & 11/10/09 60-70% tongue removed, Radical fff, 38 nodes-clear, no rads/chemo. 3 petscans-clear
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