OP Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | I am so scared. I do not want to do this again, not at Christmas time. It is not fair. I know they have not said the words, but I know my body and I know what is changing on my tongue daily, is not good. The pain is increasing by the day. I hope that my MO can get something done for me.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
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