I am putting a new name to the definietion of abnormal and one who dais not follow any textbooks. smile I even have my Doctors stumped on this one. I got a phone call at school that there was uptake on my tongue. I am thinkingthe uptake was at the back of my tongue. Well my RO calls after I get the call from my ENT and headed down there to see him so he can take a look. He came in the office just to see me. Love my ENT. I begin telling my RO about the pain, not knowing he talking of a different area than I am. When I ge tto my ENT's office he showed me the PET scan and te front of my tongue was lit up like lead balloon. He said that if it is lit up that much there should be something there. The CT part of the scan did not pick up anything. He did not feel or see anything in that area either. However, I was telling him about the pain at the bck right of my tongue. He poked and prodded, and then decided to shcedule an MRI to get another look and see if the MRI shows anything. So shall I be worried for the simple fact that this morning I noticed a white spot on my tongue that was not there yesterday morning. My ENT said it look like scar tissue, but since it was not there yesterdy it is bothersome. Hence the MRI next week sometime. Anyway, I am still on pins and needles because something is different in m mouth than it was a week ago, but the PET showed a different area. How crazy is that?


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12