Hi Angelia,

I am hoping that a lot of what you are experiencing is the tongue just healing and the tissue sloughing off. I lost almost of of my tongue but others who have more tongue tissue from what I've seem here seem to go through a longer period of having things change with thier tonge from the assalt of surgery and radiation. It really does a number on the body- especially the radiation. I often get little nicks and sore spots from being too bold and eating foods that are crunchier than I should- and or eating them too fast.
Its hard to adjust to this new life.

I know how difficult it is to endure constant uncertainly. It is just awful and nothing can help until the doctors say everything is OK. I understand completely.

You hang in there and try and relax. I still use warm salt water rinses and also half hyrogen peroxide and water to take care of any irritations I get and it seems to resolve most things that used to freak me out.
Maybe that could help. I find that it feels good and keeps my mouth cleaner and my gums healthier too which is hard to do without a tongue.

You are in my thoughts and prayers. Hopeing you start feeling better physically and less worried about things too.

Big hug to you

KATE

I wish there were