OP      Patient Advocate (old timer, 2000 posts)    Joined:  Jun 2007  Posts: 5,260  |     The 2 of you I understand completely.   I just wish I had a feeding tube and maybe I would do better. You both have had a rough go too and I would bet the 3 of us will be here for a long time yet one way or another.  Charm,  thanks for posting the words from the song.  I really loved them and what they say. I'm sure Christine will be along side us as life continues, even if it can be miserable. Miserable but enjoyable at times . The bad makes the good more realistic and pleasurable. My kids give me the biggest down days. Move closer Dad so we can see you more.  LOL  Maybe a phone call every other day and a visit once every month. Maybe they are the sick ones and I'm supposed to worry about them. Glad I was raised to take care of my elders.        
     Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan.  I averaged  about 2 to 3 surgeries a week there.  w  Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube .  Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
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