I know quite a few people who deal with HPV not necessarily orally, but ya. Its not a fun disease, but it's also not always detectable, and people can pass it on without knowing as well.
What I don't understand is why doctors tell people they don't have it anymore after 3 years of clear checkups and then 6 years later you get another symptom or it shows up again? Wouldn't this generally mean that it's been there the whole time, and not that it goes away. I have heard it both ways from doctors, some say it's life long and others tell you it goes away. Do we really know the correct answer to this?? If not, doctors shouldn't really be telling people one way or the other.


25/female at diagnosis
Dx;stage 3 SCC tongue 03/25/2010
Surgery 04/13/2010
Trach,ng tube, peg feeding tube
Hemiglossectomy, right side neck dissection, 40 lymph nodes removed. Free-Flap transplant to tongue.
30 rounds IMRT ended July 15,2010