I do rinse constantly with the mix of soda, water and salt. And they have me on oxycodone, 5mg/5ml 5-10ml every 4 hours and ibuprofen for inflammation 2 times per day. the magic mouthwash does nothing. I have sores all over my tongue part of my tongue. Luckily the transplant part of my tongue has nothing. But now they are saying i have to have the peg tube put in. I would have no problem if they could find a way to numb up the sores, thats the only thing that is making it so difficult for me to swallow right now.
They have scheduled for me to go in and get the peg tube put in on the 28th and couldn't do it sooner, so i have until then to try to figure something out, or I will have to have it in. Already was pretty dehydrated yesterday cuz of these sores. They burn whenever i put any liquid in my mouth.
Saliva is so thick i constantly have to get up and spit it out and rinse my mouth doesn't really help it. Its affecting my speech now, cuz whenever I talk I blow saliva bubbles, or my tongue hurts so i try to guard it.
25/female at diagnosis Dx;stage 3 SCC tongue 03/25/2010 Surgery 04/13/2010 Trach,ng tube, peg feeding tube Hemiglossectomy, right side neck dissection, 40 lymph nodes removed. Free-Flap transplant to tongue. 30 rounds IMRT ended July 15,2010 |