Platinum Member (300+ posts) Joined: Jun 2009 Posts: 440 | Christine pretty much said it all. I never got mouth sores real bad but everyone is different. I made sure to do the baking soda rinses often throughout the day. I used the magic mouthwash prior to trying to eat. I had the PEG tube in and I still lost 65+lbs, alot was due to a sensitive gag reflex that would cause me to vomit everything. The radiation was by far the worst part of treatment for me, you can get through this!!!
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0 Elizabeth, 33, mother of 3 girls (4,7, &8yrs old) 3 rds of chemo(Carbo/Taxol) Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube. 30 rds of rads with weekly cisplatin SCANS ALL CLEAR! OCF Regional Coordinator of San Antonio Walk
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