 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Im so sorry you are having this much difficulty so early in your treatments. Do not give up!!!!!! Keep using the meds to help you eat and drink. If you stop drinking, you will quickly get dehydrated. It will also make it so much harder to regain the ability to swallow later so drink every day.
Are you on the fentanyl patch? Ask you doc about it. Its changed every 72 hours and should take away most of your pain. Do you rinse your mouth with the combo if 16 oz water, 2 tsp baking soda and 2 tsp salt? You can omit the salt if it burns, but rinse at least 5 times per day, it will help. Musinex will also help with the mucous.
Believe it or not when you look back at this period of time next year, it will all look like a bad dream. This is just a short time of discomfort you must go thru to save your life. Keep posting, we are here to help you thru this. Best of luck with everything!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
