Hi Darlin, I'm so sorry that I haven't been I this site to help like the others. I have been hanging on the American cancer Society Head and Neck site. It's kind of tough jumping from both sites and having the energy. Looks like I'm a few weeks ahead of you. I was like you young and didn't want the PEG; plus I am a RN so I was being stubborn. But my sores got so bad I couldn't eat any more. Finally had peg put in 3 weeks ago. I also was trying to swallow everyday but a soon as the mucus go too thick I had a bad day of throwing up. Threw up 4 times in one day. That is when I lost my voice. The acid from the vomit hurt my mouth so BAD; I was crying and I just wanted someone to come a chop my head off! I use Oxycodone q 6hrs and dilaudid for break through. I also have some liquid vicodin that I take because somedays in the early mornings I was getting low grade temps 99.3. I attribute this to the build up of fluids and mucus at the base of the throat when sleeping. Then I had to try and hack it all up. I'll admit once the peg got in and I didn't want to stimulate my gag reflux so much I'm not swallowing that much so I don't have to deal with the sores. If I do swallow it's very little and it's while I'm taking a shower in case is stimulates gag and I have to throw up. I get then to write prescrition for phenergan and Ativan they really hepled. with nausea and help to relax. Just becarful taking them together because they can really knock you out! I also try to chew and spit out a apple a day to keep my mouth stretched.
My last radiation dose is tomorrow 33/33. Last chemo is on Wed. 3/3 of cisplatin. I know what you mean about wishing the pain stops as soon as treatment ends. But oh well we will both get there. I'm not sure what is more painful now my mouth or my neck I have 2 degree burn on right side. 1 degree on left. Using combination of silvadine cream and Aquaphor. Well, this is becoming to long! I just wanted to say HI and give you my e-mail if you have any more questions. I will try to check this site more often; but like I said I also use the American Cancer site too! God Bless! All we can do is put in Gods Hands now!
Charles
