Mine were from 3 yrs up tp 16 and each of them understood what the possibilities were. They are above average intelligence and that is why we told them everything. 3 of them take all of the awards at the end of the school year, which I don't think is fair to the others, but they do earn them. No bragging like most do just laying it on the line.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here