Supporting Member (50+ posts) Joined: Aug 2008 Posts: 96 | Hi Tammara, First, I am so sorry you are going through this. There is nothing harder than watching your husbands decline. I agree with Liz that you should look into taking a leave from your job. You will never get this time back. It sounds as if you work for a school system, as I did. Have you asked about FMLA? I stopped working about 3 months before my husband Ron passed away, and I would not change that decision for anything. One thing that needs looking into is the level of Hubert's pain. If you have Hospice involved, his pain should be well under control. I do hope that you still have 4-6 months, but just be aware that it may not turn out that way. Ron was considered terminal, there was mention made of about 3 months, but he died within a month, very quickly. I thought I would be prepared, but it was literally a half an hour and he was gone. None of our children even had the chance to get home before he was gone. We had not involved Hospice yet--I thought we still had some time to do that. My thoughts and prayers are with you and Hubert. Please come to the boards for the strength to get through this. We are here for you. Lori
Lori, cg to H Ron, age 56. Stage IV Oral SCC-T1N2. Tongue resected and right ND 8/05. Teeth removed, PORT, PEG, IMRT x33, Cisplatin x3. Tx ended 10/05. Recurrence 7/08 Stage IV. Surgery 8/30/08. 2nd recur. 11/08. 2nd surgery 2/2/09. 3rd recur. 4/9/09. Erbitux wkly. 5/09-? Ron died 6/6/09. Lori also passed away 8/20/11, colon cancer |