Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | I can tell you the pain is normal. I am also on the pudgy side of things. I did have cramping in other areas of my stomach for a few weeks. That cramping is gone now. I too had that awful smell with the PEG tube, and still do sometimes. Onto the follow-up with the PEG, I wish I could help you there. I got very lucky and the GI Dr. who put my PEG in gave me his personal cell number if I had any questions. I have seen him a few times in his office without any appt, so he could adjust the tube due to losing weight and the tube getting too lose. One the nutritional side of using a PEG I have not had any help except for on here.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
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