Pam,
my hubby didnt experience any bleeding from the site, only leakage. im not a dr by any sense, but that doesnt sound normal.

the rainbow of colors in the tube sounds pretty normal.

its ironic how we went from getting more info than we could handle from the other docs to no info on the PEG. he wasnt even scheduled a follow-up appt. i looked everything up on the web, and as u are doing...asked questions here. it was the oncology nurses that checked the incision when he had the leakage, and they got us an appt to see that surgeon for a follow-up.

vommit smell...oh remember that one very well. none of our kids or my hubby could stomach flushing the tube/feeding because of the smell. it will pass when he gets on a more liquid diet.

the gas x is a great suggestion. i would open his tube periodically to release the gas when he was cramping. gave him relief instantly.

andy experienced tremendous pain/cramping with his PEG, but each day got better. pretty rough the first 3 or 4 days though.


Teresa
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CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10