It seems that the GI offices put the PEGs in and then don't want to do follow-up. We had personal experience with this situation and many others have written about it.

Listen to Eric and make noise. When the gastroenterologist was unavailable for a problem, I called everyone on our team and got someone to intercede on our behalf. What I eventually discovered was that the PA in the GI office was a wonderful resource. He was knowledgeable about PEG care and during one fairly serious problem (again MD was unavailable), the PA had us come to the office, and he grabbed one of the other MDs in the practice to check things out.

Home Care Nurses can help with PEG care. Do you qualify for any home visits? At least an evaluation?