I've been watching this thread for awhile and as everyone always wants to understand how they end up where they end up the question seems normal to me. However the unsubstantiated speculation in this thread has gotten pretty far away from topics that have any scientific background and wandered off into the realm of urban myth.

Everyone is welcome to believe whatever they wish, but we try to keep these boards focused on what we know to be based in facts and evidence based science when it comes to the disease itself. So that new people coming here do not get unsubstantiated misinformation, I would appreciate it if everyone would keep the speculations to PM's and emails. The information on this board is based on personal experiences and how that helps others understand and cope with the issues related to this disease, and what we know to be medically accurate facts.

No one has proven a link to cell phones, amalgams, and so much more that is being tossed out there. OCF's forums get high marks from major treatment centers that refer patients here for help. The reason for that is that they are moderated and watched by professionals in the background, and that we do not let it become the wild west of ideas like the web can be sometimes, and other message boards that are not moderated degenerate into.

I hope that Marcus or another science based person chimes in on genetic predisposition's, and what has been published on most of these ideas. Bottom line while it is not as satisfying as saying this silver filling did this to me, the reality is there are no absolute answers that apply to everyone when we get away from known risk factors, and most that do not have one will never know why something happened to them, and not the guy standing next to them.





Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.