OP Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | They are Jevity 1.5, I did not pay a single dime. I am going to fight, fight, fight so that I do not have to use them, well at least that is my goal. I am going to the gastro Dr. tomorrow even though his office is closed. He has agreed to see me since I will be going to town anyway. He told me to call as soon as i got finished with the trial of the radiation and he would come right over and look at my PEG and try to get to the bottom of this pain and some explanation as to how to use all this stuff I have just received, above and beyond his job. Greatful I have him and his support.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
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