OP Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | I was talking to my dietician on the phone today and she was telling me how to clean it and asked if they had given me a syringe. I got absolutely nothing to clean this thing with. She told me that it had to be cleaned everyday. The book they gave me said that I could turn the bolster and clean it. I can not even look at it without my stomach cringing. I have no idea what I am supposed to do with this thing, because no one has told me. The dietician said she would call me right back, but that was 2 hours ago and I am ready to go to bed.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
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