I was talking to my dietician on the phone today and she was telling me how to clean it and asked if they had given me a syringe. I got absolutely nothing to clean this thing with. She told me that it had to be cleaned everyday. The book they gave me said that I could turn the bolster and clean it. I can not even look at it without my stomach cringing. I have no idea what I am supposed to do with this thing, because no one has told me. The dietician said she would call me right back, but that was 2 hours ago and I am ready to go to bed.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12