Hi Pam!

It took two weeks from Dana's first RO appointment until his first treatment. There are many calculations that need to be made to be sure the radiation is reaching the right area in the correct dose. Dana had had a previous neck reconstruction surgery with plates and screws in his neck and this was a challenge...how to get the proper radiation delivered without it being sheilded by the hardware in his neck. It took two dry runs before the RO was satisfied with everything. They will also have you come in to have a mask fitted. This is an open-weave plastic custom-fitted mask that will keep you in exactly the same position for each treatment. After reading several posts here, I would suggest taking a low dose xanax before donning the mask. Anything to make this more bearable, you know! Also, eat all of the foods you like and don't be afraid to gain a little weight. Dana lost 30 lbs. during his treatment. Your body will consume calories like crazy as it heals from the chemo and radiation, plus swallowing will become difficult toward the very end of radiation and for a couple of weeks after. Please ask any questions you think of. Everyone here will answer truthfully. The specific type of oral cancer might be different, but the initial treatment seems to be pretty much the same. Come here often for support!
Diane


Caregiver for Husband, Dana, age 52
DX 11/08, SCC right tonsil, Stage 3
RND, right tonsilectomy, Peg tube installed 12/08
Cisplatin X3, IMRT X35, last TX 3/09
CT scan 5/09 clear
PEG removed 8/27/09
1st PET scan clear 9/10/09
Minor surgery to repair PEG site 9/17/09