Pam,

I used this site constantly during my treatment and let my team at the CCC know it. I always had questions on our team day (every Thursday) and days in between with individual nurses and Doctors. Most of those questions originated at this site.

I chose to travel to a CCC 1 hours drive from my house even though there was an option closer. I wanted the CCC approach. I was also on Ethyol so I had to add an hour to treatment time. This really screwed up my work schedule and I had to put in extra hours at home at night but it was worth it. My wife went to every meeting and took notes and then made sure I could get every opportunity I could for rest.

I have a 12 year old son and made sure I kept as close to our regular schedule as I could. I scheduled my treatments so I could drop him at school on the way and made all the Boy Scout meetings and even showed up at some of his camping events (didn�t stay over night).

I had some mouth pain from ulcers but never had to get a PEG. I was back to 6 hours of work a day a week out of treatment, and am now back to 8 hours three weeks out (I still sleep a lot). I am working my way past soft foods slowly. My Saliva is lower then previous but not gone and I can eat some bread with water (had a small burger the other day). My taste left me but I am slowly getting some of it back.

I�m not one of those who �Breezed Through� but I did very well and consider myself very lucky so far.

This is not easy by any stretch of the imagination, but you may find that it is not as hard as your imagination may lead you to think.

Keep your chin up and best of luck.

Kelly