Cjack,

I feel lucky to have stumbled on this site before I went into my first RO appt clueless - sorry it wasn't the same for you.

Thanks for your reply - I'm amazed at how I'm not familiar with anyone in my area who's gone through this sort of thing (well, within the last 18 years or so).

Am I correct in thinking your husband's treatment began with radiation and chemo for 7 weeks, and the current round is chemo? Was this your original plan? The other posts I've seen looked like they started with Chemo alone, then moved to radiation with chemo. Is your cancer center part of a local hospital?

I have a KY hospital (Saint Elizabeth) with cancer center about seven minutes away from my home. The other RO I'm considering is at UC in Cincinnati, OH (about 25 minutes away). So far, my only game plan is to talk with both ROs and ask about available technology and recommended course(s) of treatment.

Regarding your treatment team ["an unusual experience given the number of specialties involved�from oncologists to pharmacists to nutritionists to the guy who delivered the cans of liquid nutrition"] - do you have a doctor co-ordinating all the movements? I feel like everything's very disjointed already, and I've only made appts with an ENT, Surgeon and two ROs. I'm hoping that I'll see more of a "team" approach like I see in cancer centers' websites.

Again, thanks cjack - my best to you and your husband.


44 at 10-26-2009 Dx; SCC, T2N2b, St.IV BOT; Rt. Tonsil out; PET 11-12-09 (3 spots); 3 rds Cisplatin, Taxotere and 5-FU started 11-19-09; PEG 12-24-09; 7 wks chemo-rads done 03-16-10. 06-28 CT/PET watching 1 node; PEG out; 11-15 CT - larger; 11-23 PET activity up; mrdc 12-21; 04-01-11 CLEAN SCANS! ; March 2018 new SCC - Meet with surgeon 4-4-18