alittlescared,

Try to live in the moment for a while. No one can predict with accuracy anything in the future. You will find throughout this journey that no amount of planning will direct the course of treatment and recovery. That was the hardest part for me. You will adapt and learn to just take it as it happens.

I was commuting almost 500 miles each way every week and managed to conduct business via teleconference even during chemo. That lasted until my voice went away for a couple weeks during the end of radiation. I was back at it as soon as the voice cooperated and 7 weeks later I was driving to work. I had a few medical devices and lots of supplies so I couldn't fly. I drove there Sundays and drove back Fridays.

Best wishes with the tumor board tomorrow.

SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023