I am so sorry for what you and your family are going through. No wonder you are feeling lost - I am sure these last two years must seem like the worst nightmare ever. How we all wish there was something we could do to ease your pain. It is sometimes difficult for this "virtual community " to get you tangible assistance, but here is where you need to be very specific with family and friends. When they say "is there anything we can do " or a version of that, lean on them with tasks they CAN do for you to allow you more time with your husband - people who offer really do mean it but all too often they are not asked to do anything. Dishes, shopping, whatever the task - get as much help as you can. Don't forget to try to take care of you too - you will need to rest and eat well to be fully present.

Hugs

Donna

Hugs to you both.