 Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I agree with Eva about the severness of headaches. I get migraines a lot plus the ones I have 24/7 from the ENT putting a hole in my eardrum. I won't complain too much tho because I am alive to feel the pain which is a big plus. These things just laugh at Percocet and Methadone. Added to the tongue, throat, jaw bone and it becomes a part of daily life. Just gotta keep fighting and being stubborn and you are OK. Good luck Morgan and keep up the fight.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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