Hi everybody. May you all be blessed and feel as relieved as I do for having the chance to share your feelings and thoughts.

I know you all are 'but' patients, and not MDs (but who's more knowledgeable that a patient him/herself though?).

I am feeling very scared about what's being going on for so long to my mouth, and about the schizophrenic steps I've been submitted, therefore I think the best is to try and see if any of you can share their experience and confirm.

Few months ago, I started bleeding from my mouth. Bleeding sounds like a big word, as in fact this was just about very little amounts of red blood (like a lentil). This happend very rarely, but kind of scared me (at that time I was young & haelathy, but had started feeling weak and unconfortable w/food some weeks before, when I realized I had also lost some weight without even realizing it). Doctors thought this could come from my lungs, as it came with cough, so asked for a CT of my lungs, endoscopy and further tests: nothing came out. I saw an otolaryngologist too, who run an endoscopy and mostly laughed at me saying this was not a matter of him and reinforcing the lung idea.
As I felt very unconfortable with my overall state (- 10% of my weight in 1 month, no appetite, weakness), I asked for a total body PET-CT. Again, nothing.
Months passed by, my throat soared together with my ear (one-side), ut MDs could not listen. They said it could be a little vein in my mouth. I saw many specialists, but none of them palpated my mouth.
Pain now increased, blood as well (not quantity, but frequency as my saliva is pinkish all time and I have a strange flavour in my mouth, no matter the carefull hygiene.
I decided to see a second otolaryngologist.
Here come troubles: he run endoscopy, luckily palpated mouth, found an increased little portion of mucous membrane in my right side, both the tonsil and the little final gum after the wisdom tooth (where I feeel pain) so decided to go for a double PUNCH-biopsy. Luckily enough, negative results, BUT, pain still remains, now also in my neck, always one side, and I am weaker day after day, my appetite never showed up and still I keep on bleeding and none can tell why.
I therefore asked for a head MRI (funny enough, I am always asking for exams to doctors who do not believe my symptoms despite the concrete evidence on my face that sth is going on).
Here is my big question: I have evidence from ou guys reading your stories that the MRI is the elective scan for this problem, then I am just guessing why nobody ever proposed it to me.
I am waiting for results in 4 days, yet I am very scared as I am perfectly aware there is sth wrong w/those symptoms.
I am even quite deceived by this very unclear process of missed dagnosis (not that I want to be ill my dear ones, I am just in need for an explanations) and MG, I realize that I had missed the only right exam sofar, then I also do feel guilty toards myself: I have a life, it was a good one, and now it feels so odd to have met the wrong doctors on my way.
I completely lost my appetite, my vital forces, not my faith.
Please, forgive the tediousness of my post and its lenghth.
I hope your days are clearer than mine, I feel your strenght and hope, and I do trust that you all be blessed by moments of little joy despite the tough situation.
May again you all be blessed, and thank you for your time and patience.
This place is functional and human at the same time, thanks for being here and for sharing your personal experience with others.