| | Joined: Sep 2008 Posts: 489 Platinum Member (300+ posts) |  Platinum Member (300+ posts)
Joined: Sep 2008 Posts: 489 | I watch some of them too Jim - I actually get some ideas on ways to make things that do not have to be chewed.
Patty
48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I bought some fatty pork the other day and put it in the slow cooker with plenty of onions, chicken broth, celery and carrots. It all eneded up tender and soft , but too tough for my mouth. I got out the blender and really let it do it's job. LOL It looked like babyfood when I shut the blender off. Nasty looking stuff but put over bread with a lot of butter made it work, The 1st bite or 2 had the normal taste and after ti could have been filet mignon or whatever, LOL, it all taste the same after #1Bite
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | I actually enjoy the chocolate ensure plus and have my pharmacy order that exclusively anymore. I'm lucky that my medical covers it. I don't mind the vanilla but it got old after a while and I really couldn't do the strawberry.
Boost plus wasn't bad but I didn't like the taste as much as I do Ensure plus. I can't do the Carnation stuff...too thick for me.
I'm mostly on a liquid diet and occasionally use my PEG but every now and again I eat solids...had mexican with my wife tonight and cherished every bite.
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I wish my insurance would pay for ensure. THey will pay for noting like it at all for some reason. My oncologist called them right after the implants and the paid for 3 montyhs for VHC then stopped and it was a medical substance.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | I think they only pay for the kind that has to go through the 'Roo bags or a pump -- That's what my supplier said about the VHC when I asked for it -- Turns out the Nutren 2.0 is a gray area, being a bag food but also being 'drinkable', although I had to use the Nesquick to make it palatable.
Back when I was drinking Ensure-type stuf, I was using Safeway's generic version, which cost less (esp on sale) and tasted the same. Likewise, Wal-Mart has some canned stuf that was tolerable and inexpensive last I checked.
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | I was in Wal-Mart today -- A six-pack of Ensure Plus was about $8.50 and a six-pack of Wally's Equate Plus, same calories, was $6.50.
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Jan 2009 Posts: 225 "OCF across the pond" Gold Member (200+ posts) | | "OCF across the pond" Gold Member (200+ posts)
Joined: Jan 2009 Posts: 225 | i must say I cheated and tasted martin's ensure. I did like the vanilla one and the chocolate, but the most foul one was orange. That was horrid.
We have Nutriment for about 70 cent a can, it taste nicer than ensure and they have chocolate and vanilla and strawberry too. It's a meal in can too. So I reckon it's probably near Ensure. They sell in Asda (which owned by Walmart only is in the UK). It might make a change if you can find it in the US.
Girlfriend to Martin 49 years old at diagnosis
Diagnosed with SCC unknown primary June 2008.
Cancer found in single node Stage N2A (3 to 6cm).
Tonsilectomy 16th june, Radical modified neck dissection left side 30th june.
30 TX radiotherapy ended 9th October
First comparative study scan came back clear
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | But please keep in mind that you are tasting it as a normal person would, not one whose taste has been severely compromised.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Go for the GNC weight Gainer 1850.. 1850 calories per serving. Rite Aid has it on sale right now.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jan 2009 Posts: 225 "OCF across the pond" Gold Member (200+ posts) | | "OCF across the pond" Gold Member (200+ posts)
Joined: Jan 2009 Posts: 225 | I've got several packs of powdered scandishake to be mixed with milk. Martin doesn't need them anymore, so if anyone wants them I could send them in a jiffy bag to make it less bulky. I have some calorie filled powder as well where you just sneak in a spoonful in soup. (the pharmacy will only destroy them if we return them).
If anyone wants it i will be glad to send it. Martin did like the banana flavour for a while. It might make a nice change to ensure as it's thinner.
Girlfriend to Martin 49 years old at diagnosis
Diagnosed with SCC unknown primary June 2008.
Cancer found in single node Stage N2A (3 to 6cm).
Tonsilectomy 16th june, Radical modified neck dissection left side 30th june.
30 TX radiotherapy ended 9th October
First comparative study scan came back clear
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