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#92715 03-27-2009 06:21 PM
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Went to get the results for all the stinking test they love to run on us,I knew they were going to come back negative and they did. However since my radiation I have been asking and telling all my Drs that I thought the radiation messed with my thyroids and I just happened to get the right Dr to listen to me and ordered lab test and it came back that my thyroid is lower. I am not sure how to respond to this. I felt like gloating that I was right and that if the Drs would listen to me things would go better. I told the Drs for two years I had cancer under my tounge but he wanted to treat me for herpies and gingivitus. Wow I never went to med school so that leads me to my question, what is synthroid 88 mcg and what does it mean when he said that my thyroid was loiwer? I know I should have asked but there was so much going on at the time I didn't. Thanks, Brenda


49 years young 9/2007 Squamous Cell Carcinoma 33 rad treatments. One year later, 9/17/2008 50 years old through the Grace of God. last check up all clear. Living life as it comes to me.
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I'm like you Brenda, I have no idea. No one listened to me either for a long time. I knew I had cancer and they would just blow me off in the erooms. If I wouldn't have had my 3 month scope scheduled and been thinking ?? I asked My Dr that operated on my esophagus and ans abdominal anneurysm, if he would check out my mouth and tongue. When i woke up he told me he already made an appy for me with a very good cancer surgeon. Man I was glad i remembered to ask him. At least you know you were right and when you find out bout the reading,, post it will you? Good luck and best of wishes.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #92724 03-27-2009 09:40 PM
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You got it Jim. So has thaT miracle mouthwash helpped you any? I know the first time I used it it was so great. Unless someone has actually had out problem they can't get the scope of pain we are in. I try not to cry and raise cain but sometimes you just have to. My mom always says it the squeeky door that gets the oil so I squeak LOUDLY when I am being ignored.Good luck to ya heres a bear ((((((((((HUG)))))))))) we need those every once in a while, yes? Brenda


49 years young 9/2007 Squamous Cell Carcinoma 33 rad treatments. One year later, 9/17/2008 50 years old through the Grace of God. last check up all clear. Living life as it comes to me.
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Synthroid is a medicine that duplicates what your thyroid produces; 88 mg is the dose -- Often they have to play around with the dose, and check it in a month or six weeks to see what the effect was, then maybe change the dose. When he said lower, your thyroid wasn't producing enough, so the synthroid is raising the production.

Here's more from this site on hypothyroid (Hypo is under-production; Hyper is over production), more of which can be found by using the search engine on the MAIN PAGE:

http://www.oralcancerfoundation.org...ID%3A11&q=thyroid&sa=Search#1048


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
Pete D #92726 03-28-2009 03:02 AM
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Yep, you are so right about using the lube. We should use super lube for a longer smoother ride. LOL I need those bear hugs daily Brenda. They just do something to make the EGO more positive and when it's from a pretty lady such as you, so much more enjoyable.When I went to Wheeling Hospital yesterday to get tha script, I was getting all the hugs I could handle from the girls that did my radiation. They are so special, caring and pretty that I wanted to put one in my pocket and bring her home. LOL I was glad to see that Pete answered your question about the thyroid reading. Pete is very helpful to many. Have a good day Brenda, I have to go to my daughters thi morning. They found her ex at the bottom of the stairs. Only about 44 but on drugs and way too heavy so they think heart did him in. Best peds nurse in the area until he got hooked.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #92727 03-28-2009 03:06 AM
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LOL I forgot to answer your question, Yes the Miracle Mouthwash helped. that and .25 alprazalom and 1/2 of a perc with the wash and I slept sound until 4 AM. Drinking coffee now and arguing with my tongue. LOL (((((((((((((((HUG))))))))))))))))) Have a good day and keep that hug.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #92741 03-28-2009 12:43 PM
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I started out with 75 and now I'm up to 125. With the thyroid I never know if my dosage is correct since I'm not sure if I feel as energetic as I would had I not had cancer. Makes sense? In fact Friday I stopped by my PCP and he gave me some samples of 113 and said it shouldn't make any difference.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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Jim I can't seem to give up my coffee Its the only thing besides water that I can stand to drink. Oopps I do love me some french vanilla cappachino. Starbucks here I caome. I hope you are feeling better. My mom says that if the pain is unbearable to take the dang pills the dr gave me, well at one time I was taking 7-8 vicodine a day. TOO MUCH, thats why I went on a bitching spree and started yelling at all my smarter then me Drs and finally I get results. Ok so now I take maybe three vicodine a day and maybe one percocet. This other medicine he put me on for my thyroids is giving me such a headache and turning me so witcchy that I have been giving my pregnant daughter pure doo doo. She doesn't deserve this from me she hasn't done anything to me. So in the morning I am going to rant and rave if I have to and get that Dr to figure out whats wrong with me. I hate myself when I get like this because I cant help it. You know how you feel when you feel trapped you fight well I am fighting the wrong person.
I am glad that medicine is working for you and do be careful with that patch I have heard some wild things about it.

Thanks David for the input on the meds that the dr put me on but does it make you grouchy? Headaches so bad you feel it in your eyes all the way around to your neck and just thinking about it makes you want to scream out but wont because it would hurt? That is what is going on with me.
Well I think a group hug is called for ((( ((( ((( hug hug hug )))) ))) ))).
Well off to bed and my nightmares again. Good night all remember to smile and keep thinking only happy thoughts. Something like a great big fat juicy GREASY double cheeze burger loaded and a large French fry!!! OR even some spagetti with lots and lots of sause yum. Brenda


49 years young 9/2007 Squamous Cell Carcinoma 33 rad treatments. One year later, 9/17/2008 50 years old through the Grace of God. last check up all clear. Living life as it comes to me.
Joined: Nov 2005
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One of my friends was exposed to some kind of toxic metallic dust from working on a boat propeller and apparently it really messed up his thyroid -- He was running around with a hair-trigger temper and moods and anger totally out of proportion to what was going on -- Took them a while to figure it out -- They did some radioactive seed implants to kill his thyroid, then adjusted his synthroid meds until they got it right and he is now just fine.

If you think it's the thyroid meds then get yourself right back to the Doc that prescribed them and tell him/her your symptoms -- You won't get it right until you do that.

I've never had headaches from synthroid and I've been taking it in a number of doses for about 15 years.


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
Pete D #92793 03-29-2009 09:36 PM
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Thanks Pete I figured I would let the Dr have what my daughter is getting all I want is to feel normal somewhat again ya know. Thanks and good night, Brenda


49 years young 9/2007 Squamous Cell Carcinoma 33 rad treatments. One year later, 9/17/2008 50 years old through the Grace of God. last check up all clear. Living life as it comes to me.
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