Previous Thread
Next Thread
Print Thread
Page 3 of 4 1 2 3 4
CCMominVA #89619 02-06-2009 10:01 AM
Joined: Jul 2008
Posts: 228
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: Jul 2008
Posts: 228
My oral surgeon scheduled me for a follow up appointment from my biopsy at a week (would have been a Friday) but then he called me on Tuesday and gave me the news over the phone like it was no big deal and just another day on the job. I'm still a little bitter about the whole thing, but I've mostly moved on. Now, we won't discuss the phone call I received from my dentist after he found out the results. Lets just say if we ever meet in public, we will have words.

Good luck with your biopsy!!!!!!!!!


Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.

**** Stephanie passed away 12.15.09.... RIP our dear friend****


sobradley #89624 02-06-2009 10:55 AM
Joined: Nov 2005
Posts: 1,128
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Nov 2005
Posts: 1,128
Be thankful you got the results!

Some won't do it over the phone and make you wait to see them in the office -- Personally I would rather get it bluntly now than gently later -- I've been fortunate enough to have both timely and caring Docs in this regard, but the manner of delivery is just not as important as the message itself IMHO.


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
Pete D #89626 02-06-2009 11:03 AM
Joined: Sep 2008
Posts: 489
Platinum Member (300+ posts)
Offline
Platinum Member (300+ posts)

Joined: Sep 2008
Posts: 489
I think that with some things the delivery does not change the message. Probably where the saying "don't shoot the messenger came from".

Patty


48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
Good1 #89632 02-06-2009 11:58 AM
Joined: Jan 2009
Posts: 97
Supporting Member (50+ posts)
Offline
Supporting Member (50+ posts)

Joined: Jan 2009
Posts: 97
Oh mine turned into drama. After a couple of months of antibiotics and begging for tests, I finally got a CT scan and some blood tests. Apparently the results made me the �Property� of a different doctor than my GP, who had ordered the tests. It turns out that the ENT was on vacation for a few weeks and the decision was made to wait for his return before addressing the issue, including giving me the news.

My GP broke protocol and gave me a call from home late Friday night; he was really upset about the bad news and the handling. Since this really was no surprise to me, he was taking the news way worse than I was. We had a long conversation that night and I learned very quickly that he really wasn�t up to speed on the TX. He didn�t feel it was right to let me wonder for another month and took a great deal of professional heat for telling me the way he did. I still owe him a big favor.

Those extra weeks gave me a ton of time to do more general research, be a little better informed, prepare my wife and have some of my very best ornery ready. I refused to let them "puncture" (needle biopsy) that massive node and spread C cells, telling them that if they �wanted to play with it, they could take it out first� As a result I already had the worst of the surgery over with before learning the cell type.

I suppose that the medical people will have the same reactions and defenses that anyone would. Cold and distant, avoidance, compassionate and helpful, as much as they see this stuff, getting too deeply involved would be damaging.

As difficult an idea as it is, perhaps we need to work at helping them cope with watching this happen to us, just like we have to with our families and friends.

Being informed, opinionated, ornery and fun,

UncleVern


ENT conjectures before, no PET approved by HMO. Metastasis 11/06. CT 2/07: mass RT sub-mandibular gland. 7 CM mass/tonsil, base of tongue removed, biopsies 2/07 and 3/07. Vein lost, RT face numb. PET scan: spot in chest, un-investigated. Oral surgery 4/07. 3X Cisplatin and 32X IMRT from 4/07-5/07.
UncleVern #89634 02-06-2009 12:06 PM
Joined: Jul 2008
Posts: 228
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: Jul 2008
Posts: 228
I am glad that I didn't have to go to another doctors appointment just to get the results, but man, over the phone? I don't know, I didn't think doctors would ever give out information over the phone. My ENT is very strict with information and it all has to be done in person, which I'm okay with. She won't even tell you if it is good or bad news. Now, for my dentist. The day I had received my kick in the shins from my oral surgeon, my dentist decided to give me a call to I guess offer his condolences. Anyway, I answer the phone and he says who he is, and then says that he is sorry that I have cancer but that he had been right all along, and had told me so. So I responded, well thank you very much, bye. Hello?!?! I'm 23 with cancer, thanks for the kind words. Ack, some people need to learn some tact.


Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.

**** Stephanie passed away 12.15.09.... RIP our dear friend****


sobradley #89636 02-06-2009 12:23 PM
Joined: Jan 2009
Posts: 97
Supporting Member (50+ posts)
Offline
Supporting Member (50+ posts)

Joined: Jan 2009
Posts: 97
Oh I think that phone call was the hardest thing the guy ever did and the kindest thing anyone ever did for me. Really I think waiting another month would have been much worse and created a rushed chaotic situation.
As it was the time was well used to get my affairs in order as well as students, staff and family prepared. Having that time meant the difference between being jobless, homeless and a burden on the community and saving my home, career and life�s work.
There is a special place in heaven for those who are valiant enough to put themselves at risk to do what is right like he did, he is my hero and my champion!

UncleVern


ENT conjectures before, no PET approved by HMO. Metastasis 11/06. CT 2/07: mass RT sub-mandibular gland. 7 CM mass/tonsil, base of tongue removed, biopsies 2/07 and 3/07. Vein lost, RT face numb. PET scan: spot in chest, un-investigated. Oral surgery 4/07. 3X Cisplatin and 32X IMRT from 4/07-5/07.
UncleVern #89644 02-06-2009 01:44 PM
Joined: Jan 2009
Posts: 11
Member
OP Offline
Member

Joined: Jan 2009
Posts: 11
Thanks everyone for the feedback! I guess it really varies in how the delivery is made, and for the delivery to be received! My heart just breaks every time I think of those dealing with these issues. If, and it's a big if, I get bad news, I think I fear telling my children the most. They are already dealing with a ton with Dad gone! But, there's still time between now and then....and now, I'm just keeping them as busy as I can with their soccer passion. smile

Thanks again, this is so helpful!

CC

Pete D #89647 02-06-2009 03:04 PM
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Offline
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
It may even take longer than a week.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Pete D #89664 02-06-2009 08:05 PM
Joined: Aug 2008
Posts: 113
Senior Member (100+ posts)
Offline
Senior Member (100+ posts)

Joined: Aug 2008
Posts: 113
I always know our results way before the doctor's visit. I don't like blunt surprises. Example: A day or two after a catscan, I will call the the office that did the procedure and tell them that i will be picking up the written report. They have it ready for me.(It's my property) That way I can review it, cry or be happy with the results and then see the oncologist on our next appointment. This way, I have all the information digested before we see the Doctor. Our doctor is rather brutal when giving out bad information---she just blurts out whatever she has to say. It gives me time to prepare myself. I will never forget the day she told Jim that he only "had a year to live, perhaps ! Needless to say, I fainted right there in the office. --- Claudia


Husband 2/3 tongue removed March 2008. Free flap. . Stage IV. Radiation and 3 chemo's (cisplatin,taxol & erbitux). .Pet scan Aug 08 showed mets to lungs .Oct 08, recurrence. - In the arms of Jesus, July 15, 2009
Claudia Nelson #89667 02-06-2009 08:13 PM
Joined: Apr 2005
Posts: 2,219
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Apr 2005
Posts: 2,219
CC,

Your doctor should be able to tell you how long it will take to get the biopsy back. I had mine done on on a Friday and the results (faxed) were in my office by the following Tuesday. All labs are different, but the average is about a week.

Good luck.

Jerry


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
Page 3 of 4 1 2 3 4

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,264
EzJim 5,260
Brian Hill 4,918
Newest Members
jessb2025, JudiK, DERuble, Nancyms, Goodpn
13,335 Registered Users
Forum Statistics
Forums23
Topics18,252
Posts197,147
Members13,335
Most Online1,788
Jan 23rd, 2025
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5