| | Joined: Jun 2008 Posts: 309 Platinum Member (300+ posts) |  Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 309 | Hoping that pain lets up for you. do listen and go get it checked if it continues... it may just be some of that orneriness working its way through though 
Rita - Age 44
wife, mother of 4 - ages 3,16,21,24 & grandma to 1
(R upper) Maxillectomy 8/8/08 - UW / Seattle, WA.
===============================
"Those who think by the inch and speak by the yard, should be kicked by the foot."
| | | | | Joined: Sep 2008 Posts: 489 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2008 Posts: 489 | Jim
I'm just catching up on the reading. I'm sorry to hear that you have another battle. I am new here, but you are always willing to give some advice to others and light hearted. I will also keep you in my prayers. I believe that you are a fighter and you will win this battle also. I'm in IL and would come sit and let you talk for days if I was physically able.
Patty
48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I just love how we all offer each other so much energy. We are a great group and would be for anyone that needs advice in any given situation. I talk to the Drs office that made the Appt for me In Pittsburgh. They wanted to know when I was having the surgery. This is the Dr that operated a little over 9 yrs ago. I was told that if I have to go to the ER to be sure and tell them what's going on,. I was told they would probably transport me to Pittsburgh.. I don't want any ride in this weather especially in a chopper , unless they let me drive. That would be a treat for all involved.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | LOL.....can you come to NJ? I wouldn't want to miss that ride!!! How is your pain now? Any better? Do you have anything to relieve the pain at all?
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I have plenty of pain pills and still some wash with 3 different narcotics in them. Oh Yes,, I could get happy real easy..Suzanne but I kind of just sneak up and just take a half pill. heck Suzanne, I',m a happy guy anyway. I just take the meds sometime to get rid of them. LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | LOL.....that's why we have insurance right? If you have good ins they should only be $10!!!!! Keep the refills coming!!
Here's a story for you...my first glosectomy I was popping the hydrocodone like sweetarts. MMMMM Then is dawnws on me "Suzanne, you have not gone to the bathroomin 4 days" So I called the doc. They said buy stool softner. Ray was at work and I had to go to the store and make the purchase. I ventured out (I looked really good by the way I think I may have even showered that day) Then I got home and realized that would take FOREVER to work. So back I went for the up the heinnie kind..LOL that was a dream. Lucky for Ray he walked in the door just after all the excitment was over.
Hope this makes you laugh...I made sure I did the self checkout that day!!!
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Sep 2008 Posts: 489 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2008 Posts: 489 | Here's one that would not be so funny if I wasn't ok.
I too was popping the hydrocodone in August. I had my first chemo treatment, picked up the anti nausea drugs and went home to bed. I work the graveyard shift and planned to go to work that night. I took one of the 4 pills that the doc precribed that was just for anxiety before bed. I got up and felt fine so I headed off to work. Somehow, I got off the right shoulder of one of the country roads out here, over corrected, rolled the pickup truck and came to rest on the wheels in a corn field. I called my boss and asked him to call the cops and pulled the truck up out of the corn field. The cops towed the truck and sent me in an ambulance to be checked out. That is the last thing that I remember. A friend of mine picked me up at the hospital and was told that I had a concusion and to keep me awake so we went to Denny's. He tells me that I proceeded to eat 3 pancakes, bacon, eggs and oatmeal with brown sugar. I had not eaten any solid food in over 3 weeks because of the pain from the tumor and do not remember any of it. That was my last meal of solid food too.
48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | The first thing both my friend and my sister said when they learned I was taking hydrocodone after my biopsy was "Take a stool softener!". I still have some of the stuf (Natural Vegetable Laxative) that the nurses recommended during my nuking a couple of years ago -- I couldn't find any of that Natural Red Meat Laxative.
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 531 | How you haning in young man...I am sending out good thoughts hmmm yeah they are good lol...keep us posted...if you need to chat just yell...
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Suzanne and Good 1 seem to had all hte hydro fun and dangers. Had to laugh at one and feel bad for the others.. I never have had a reaction to hydrocodne except the constipation,, i took everything to get RELIEF LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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