#83478 11-04-2008 04:31 PM | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Nov 2007 Posts: 681 | Ladies: Can anyone help?? I am spending a fortune trying to find a lipstick which stays on for my eternally chapping lips. This was somewhat of a problem before OC because of medications but since the surgery it seems that some of the glands that keep the lips moist are not working. Also, I need to wipe my mouth a lot when I eat and drink because I dribble from the gully created when my lip was cut for the surgery. I am trying to avoid shiny lipsticks since they show up every flake when I chap - which can happen almost instantly when I start to dehydrate .
Thanks, Malka PS: I am looking for a lipstick without any blue tones in orange to tan range
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013. Support OCF
| | | | Joined: Jul 2008 Posts: 228 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Jul 2008 Posts: 228 | I wish I could help but lipstick is the one thing that I avoid because I can never find the right color ( and because they all wear off on me)! I usually just use my burt's beezwax chapstick. I would just go to some place like Ulta and look around.
Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.
**** Stephanie passed away 12.15.09.... RIP our dear friend****
| | | | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2008 Posts: 531 | Hi...I don't know if this will help but try a natural lip balm under or over regular lipstick...Like Stephanie said a natural product something like alovera or beewax lip balm something that will give moisture...if it was color you wanted long lasting there are a lot of brand names out there that really work. They have two steps lipstick and gloss...so the color stays on and just have to apply the moisture or gloss part...maybeline for one...
Dianne
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Geez, I threw all of mine away. It just didn't look right when I shaved,
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: May 2007 Posts: 622 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2007 Posts: 622 Likes: 1 | You shave your lips <<BIG GRIN>>
Sorry Jim... I couldn't resist 18 YEAR SURVIVOR SCC Tongue (T3N0M0) diag 06/2006. No evidence of disease 2010 Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.� Stephen Hawking | | | | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2008 Posts: 531 | Well I heard a lot of you guys shave the inside of your mouth just harry beasts...
Ps I meant alveno lip balm
Dianne
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
| | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | That's true -- I have to shave my tongue now...
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | Joined: Jul 2008 Posts: 228 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Jul 2008 Posts: 228 | ah, those pesky hairy forearm free flaps. You guys are crazy!
Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.
**** Stephanie passed away 12.15.09.... RIP our dear friend****
| | | | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Apr 2006 Posts: 794 | Y'all are simply the best..I needed a lift, and I knew exactly where to find one!
Malka, it is hard to find a lip gloss that doesn't have sunscreen in it, but if you're using something with sunscreen in it, it might be causing that continuing chapped feeling. I use one by Savannah Bees that is silky, non-perfumed, non-medicated, and non-sunscreened. I notice that some are now available from the more common makers, but you really have to read the labels carefully. If you could find a tinted lip gloss, it might feel good and look pretty too.
The long-asting Revlon lipsticks are great....they sorta stain your lips, so that you keep some color. They come in a narrow tube. You might try one of those, with a gloss over it. They also are now making a creamy Color-Stay lipstick...worth a try.
I keep some of my nice Mary Kay "super emollient night cream" (like pink vaseline) by my bedside and reapply whenever I wake in the night....along with my spray bottle of Biotene mouth wash. Breathing funny makes our lips dry also, so keep them greased up at night and maybe the days will be more comfortable. I hope so!
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Just think of the odor if the flaps were underarm. LOL WHEW
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2008 Posts: 531 | lmao leave it to you jim to think of that one..almost fell off my chair....Even hubby laughed and that is hard to do....
My friend used to also sell mary kay and said there was a product that was sold that does help moisturizes....
Dianne
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
| | | | Joined: May 2005 Posts: 31 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: May 2005 Posts: 31 | I have found using plain old vaseline at night works best for me in our desert climate. Inexpensive also.
Linda
Husband diagnosed 2/9/05 SCC Larynx (piriform sinus)Stage IV,T4,N1,MO cisplatin/5FU 3/21-3/25 & 4/11-4/15, began 39 rad 4/21/05 last rad 6/17/05, mrnd 10/7/05
| | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | But think of how much money would be saved in the long run by not needing as much deodorant!
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2008 Posts: 531 | Pete I think you and jim have one track minds lmao
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | geez,, what is deodorant and what is it used for?? Thought it was for back of jeans for bad gas time. LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | Back in a former life, when I lived full-time in a small RV, traveling slowly about, I seldom used soap.
I would wipe myself down with yesterday's laundry and apply deodorant, wearing the clothes only once. I would also jump in any clear body of water for a rinse, but didn't want to pollute with soap.
As long as I did my laundry about once every seven-ten days, I was OK. In fact, after a couple of months on a trip to Alaska, I asked friends (after a hug) if I smelled and they said no!
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Nov 2007 Posts: 681 | Gee guys - thanks for all that interesting info. Are you all really 6 year olds pretending to be grown up? Ladies - thanks for your input. I am trying to avoid gloss as it shows up those flakes.
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013. Support OCF
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Well if we ever do get together as a group, I vote for Petey and Jimmy to share a room at a nearby hotel. I just can't remember ever asking someone AFTER they hugged me if I smelled OK. In retrospect, shouldn't that question have come first? JM2C's
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | In that former life when I was just slowly traveling around the US and CA, I decided that I wanted to be a 12 year-old because that was a very good time of life, especially around water -- We would go in August for a month in a cottage on Lake George, NY -- My brother, friends and I would live in our bathing suits -- We never used the bathtub, just jumped in the lake a lot -- Drinking water came directly from the lake, so soap was a no-no.
If I asked the question before the hug, I might get skewed responses -- I wanted to know if people noticed anything without prompting.
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | Joined: Sep 2008 Posts: 250 Platinum Member (200+ posts) | Platinum Member (200+ posts) Joined: Sep 2008 Posts: 250 | Pete,
Thank you for bringing up some incredibly wonderful memories. My family, with about 3 or 4 other families, used to go camping at Lake George. We used to go off-season a lot when even the "facilities" were closed. You definitely don't want to forget the TP, because some of that vegetation you might have to use instead could turn out to be poison ivy, sumack, or oak! We all had and brought our boats and dogs with us. Mom had to get the water from the lake for morning coffee on the campfire.
Wow! The memories are just flooding in. Thanks again.
Lani
SCC part glossectomy 3/06, recur 8/06 glossectomy, floor of mouth, part of jaw removed, RT/chemo thru 10/12/06, PET clear 7/08 "A bend in the road is not the end of the road, unless you fail to make the turn" Passed away 12/14/08
| | | | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2008 Posts: 531 | Wow from lipstick to camping and hairy stinky mouths hmmmm...we are nothing but creative...lol lol lol lol
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
| | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | The cottage we always rented was at the Ticonderoga end and at that time there was a paper mill in Ti -- To this day, the smell of sulfur from a mill brings back pleasant memories -- I have water-skied the entire length of the lake on a slalom ski and walked across it on the ice in winter.
It became a local Rite of Passage for young people to climb Roger's Rock after I was in college, Army, etc. -- One year, after the season, I kayaked over and climbed it, wearing the traditional gear of bathing suit,tee shirt and bare feet -- I got about half way up and it started to rain lightly, making the moss on the gneiss rock as slippery as goose-grease -- I really started wondering about my lack of common sense, climbing in the rain at 55 YOA, out of season with no one to see me fall (and then I would be polluting the water!), but I made it -- I think of that often when I contemplate this cancer stuf!
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | Joined: Sep 2008 Posts: 250 Platinum Member (200+ posts) | Platinum Member (200+ posts) Joined: Sep 2008 Posts: 250 | Pete,
As we kept going back each year our boats kept getting bigger and better - rowboat to rowboat with a motor to a 14' outboard to a 17' outboard. I never did want to try water skiing, but we had the fastest boat for it by the time Daddy was done. We used to have friendly races and they were a blast.
We kids decided to climb (on the path) one of those mountains one year as a thunderstorm was rolling in. We figured it was OK bacause there was a higher mountain next to it. I was just a few feet from the top when my dog panicked and jerked me down with his leash. At that moment lightning struck right where I had been about to step. Turns out that the mountain we decided was safe to climb was filled with iron ore.
It's amazing sometimes how we ever made it this far.
Lani
SCC part glossectomy 3/06, recur 8/06 glossectomy, floor of mouth, part of jaw removed, RT/chemo thru 10/12/06, PET clear 7/08 "A bend in the road is not the end of the road, unless you fail to make the turn" Passed away 12/14/08
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Good answer Pete. I like you am going to stay at 12 yrs of age. It helps to be the happy guy when you fight this OC. Keeping young is the way to go and never be too serious. Hell, I found out today that my postrate is big now too. More good times to go thru, but with a smile.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
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