| | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 531 | lmao leave it to you jim to think of that one..almost fell off my chair....Even hubby laughed and that is hard to do....
My friend used to also sell mary kay and said there was a product that was sold that does help moisturizes....
Dianne
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
| | | | | Joined: May 2005 Posts: 31 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: May 2005 Posts: 31 | I have found using plain old vaseline at night works best for me in our desert climate. Inexpensive also.
Linda
Husband diagnosed 2/9/05 SCC Larynx (piriform sinus)Stage IV,T4,N1,MO
cisplatin/5FU 3/21-3/25 & 4/11-4/15, began 39 rad 4/21/05 last rad 6/17/05, mrnd 10/7/05
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | But think of how much money would be saved in the long run by not needing as much deodorant!
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 531 | Pete I think you and jim have one track minds lmao
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | geez,, what is deodorant and what is it used for?? Thought it was for back of jeans for bad gas time. LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | Back in a former life, when I lived full-time in a small RV, traveling slowly about, I seldom used soap.
I would wipe myself down with yesterday's laundry and apply deodorant, wearing the clothes only once. I would also jump in any clear body of water for a rinse, but didn't want to pollute with soap.
As long as I did my laundry about once every seven-ten days, I was OK. In fact, after a couple of months on a trip to Alaska, I asked friends (after a hug) if I smelled and they said no!
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Nov 2007 Posts: 681 | Gee guys - thanks for all that interesting info. Are you all really 6 year olds pretending to be grown up?
Ladies - thanks for your input. I am trying to avoid gloss as it shows up those flakes.
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
Support OCF
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Well if we ever do get together as a group, I vote for Petey and Jimmy to share a room at a nearby hotel. I just can't remember ever asking someone AFTER they hugged me if I smelled OK. In retrospect, shouldn't that question have come first? JM2C's
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | In that former life when I was just slowly traveling around the US and CA, I decided that I wanted to be a 12 year-old because that was a very good time of life, especially around water -- We would go in August for a month in a cottage on Lake George, NY -- My brother, friends and I would live in our bathing suits -- We never used the bathtub, just jumped in the lake a lot -- Drinking water came directly from the lake, so soap was a no-no.
If I asked the question before the hug, I might get skewed responses -- I wanted to know if people noticed anything without prompting.
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Sep 2008 Posts: 250 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Sep 2008 Posts: 250 | Pete,
Thank you for bringing up some incredibly wonderful memories. My family, with about 3 or 4 other families, used to go camping at Lake George. We used to go off-season a lot when even the "facilities" were closed. You definitely don't want to forget the TP, because some of that vegetation you might have to use instead could turn out to be poison ivy, sumack, or oak! We all had and brought our boats and dogs with us. Mom had to get the water from the lake for morning coffee on the campfire.
Wow! The memories are just flooding in. Thanks again.
Lani
SCC part glossectomy 3/06, recur 8/06 glossectomy, floor of mouth, part of jaw removed, RT/chemo thru 10/12/06, PET clear 7/08
"A bend in the road is not the end of the road, unless you fail to make the turn"
Passed away 12/14/08
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