| Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Feb 2004 Posts: 598 | If you review some of the other posts in this forum, and some of the blogs, you will find that depression after completion of treatment is very common. I have battled it off and on for the past 15 moths. It was worse the first few months, then improved. I can fall back into a funk more easily now than before treatment, and find that my temper is a bit shorter now than before, especially if I am a little short on sleep, which has been happening a lot recently with job craziness.
There is a considerable body of literature out there that talks about cancer patients suffering from a form of PTSD, and I do not doubt that a bit. No shame, and lots of benefit, to getting it assessed and treated if it continues to be an issue. I find that eating better, getting exercise, and getting rest really helps. Now if I could only do all those things regularly . . . Jeff SCC Right BOT Dx 3/28/2007 T2N2a M0G1,Stage IVa Bilateral Neck Dissection 4/11/2007 39 x IMRT, 8 x Cisplatin Ended 7/11/07 Complete response to treatment so far!!
| | | | Joined: Sep 2008 Posts: 250 Platinum Member (200+ posts) | Platinum Member (200+ posts) Joined: Sep 2008 Posts: 250 | Wendy,
I understand about the meds. I was and am SO TIRED of taking pills. I can't remember the last time a Doc actually took me off of one, because I just stop taking them before a Doc has the chance to weigh in on it. What makes it worse for me is my dry mouth and swallowing problems, which makes it very hard to take pills. I can take the tiny Synthroid pill OK with applesauce, but all others have to be cut up into tiny pieces (and still taken with applesauce or ice cream). I do still take the Synthroid because I definitely noticed the difference in my lack of energy when I ran out of them for a few days.
I also understand very well a reluctance to take antidepressants, because I also refused them at first. I felt that my sadness/depression was justified and I didn't need or want a chemical attitude adjustment - I needed Doc to hurry up and make me better and let me go home! He explained very eloquently - wish I could remember the words for you - why I needed to take them. I do remember that part of what convinced me was that Doc acknowledged and validated my very real reason to be sad/depressed/upset and that anyone in my circumstances would need help to cope with it all. Also that my low mental state was adversely affecting my physical well-being and that raising my spirits would help me to get better and go home. It all made sense to me and I started to take the med then - and it DID help.
So again I suggest the antidepressants for him. It may be that his Doc needs to talk to him about them. As his wife and loved one, it's possible that you are too close - an extension of himself. Raising his spirits will make him feel better both mentally and physically, and certainly therefore make you feel better, too.
I hope this helps and I hope he can be convinced. It's only temporary and it should make a world of difference for both of you.
Lani
SCC part glossectomy 3/06, recur 8/06 glossectomy, floor of mouth, part of jaw removed, RT/chemo thru 10/12/06, PET clear 7/08 "A bend in the road is not the end of the road, unless you fail to make the turn" Passed away 12/14/08
| | | | Joined: Feb 2007 Posts: 176 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Feb 2007 Posts: 176 | Wendy, The last week of radiation and the following two weeks were very depressing for me. Treatment was finished and I was feeling as though I would never get better. I started climbing out of it about 2.5 weeks post radiation and it improved from then on.
It is a difficult time. You think you should be getting better and you're not. You are also no longer tethered daily to you doctors and the built-in patient support group at the treatment center. He should start to improve soon. Was he doing well mentally during treatment? Regards, Rob J
6-05, Left Tonsil-T1N2bM0 stageIVA, chemo(Cisplatin), radiation(6660cGy), neck disection, no PEG. HPV negative. (Doc suspects posit) 3-9-09 last of 30 HBO treatments.
| | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | Lani, my RO nurses told me to use Cool Whip -- It lubricates the throat.
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Wendy:
Hopefully you and your husband are now doing a little better than last week. I know he just finished tx so its not an easy time right now. It should start to get better very soon. Please post an update when you can. Thinking of you both. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | Hi Wendy, one of the "things" I used with my husband that helped his mental attitude was to really "listen to" one something that was bothering him during a particular part of his tx. and then research it on this forum - I would ask questions and then print responses how other people were dealing with the same thing- and then I would leave the printed pages lying out where I knew he would see them, like I had been reading them [ he would not get on the forum either] Sure enough he started reading what I had left laying around and before long he was asking me to ask questions about things he was dealing with. There were many posts and much information that helped both of us durig our journey with this disease and it helped John know that he was not alone. As a caregiver, you will need to use every resource available to you to get the both of you through this. And OCF is gonna help you all the way. Amy in the Ozarks
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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| | | | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2008 Posts: 531 | Amy that is amazing how you got your husband to accept help ..It is eerie how we have to know our partners so well that we can "trick" them into something...
My husband too is depressed but not due to my cancer or cancer in general but health issues of his own. This depression is reflecting on my recovery...I am trying hard not to fall into depression...I can only immagine how difficult it is for a care giver to watch and be effected by depression...
Wendy hang in there and the only advice I have is remember that it is the illness talking most times and not the person... and it is so difficult not to take things personally...Just keep the love going and he will come around...
Hugs Dianne
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
| | | | Joined: Sep 2008 Posts: 27 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Sep 2008 Posts: 27 | Tim is doing quite a bit better these past few days. His neck burns are finally healing, and that's what's been causing him the most grief. He still doesn't have any appetite at all though. Like Zero. And that depresses him somewhat. We both know that we have to be patient for a while longer. He just wants to start feeling "normal" again. But the severe depression has, thankfully, passed!
Caregiver to husband, 44, nonsmoker, nondrinker Diagnosed 7/15/08 with BOT SCC, stage IVa. Two positive nodes removed Cisplatin and erbitux ended 10/15/08 Radiation over 10/20/08 Back to work 11/24/08 PEG out 12/9/08 Scans 12/2008 and 3/2009 Clear
| | | | Joined: Jul 2008 Posts: 507 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2008 Posts: 507 | Like Tim, I really know what it is like to have zero appetite. It has been an unbelievable experience and, post TX, for me lasted nearly two months.
It has just now been two months since my last TX treatment so I still have a poor appetite, but the last couple of weeks my taste has started returning and now my appetite seems to also be slowing improving.
A friend I met at the CCC who is a five weeks ahead of me said it was between the second and third month that his taste and appetite finally started normalizing.
Don TXN2bM0 Stage IVa SCC-Occult Primary FNA 6/6/08-SCC in node<2cm PET/CT 6/19/08-SCC in 2nd node<1cm HiRes CT 6/21/08 Exploratory,Tonsillectomy(benign),Right SND 6/23/08 PEG 7/3/08-11/6/08 35 TomoTherapy 7/16/08-9/04/08 No Chemo Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Wendy:
Glad to hear yor husband is doing better. The past couple weeks were there worst he should go thru. Dont be surprised if he still doesnt have a couple bad days here and there, but now it should be mostly easier days. Hang in there, it will get better and better. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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