 
#22555 03-14-2007 12:38 PM | Joined: Mar 2007 Posts: 24 Member | OP  Member
Joined: Mar 2007 Posts: 24 | Just a quick question about the info at the bottom of replies. Where on the site can find the abreviations used so I can add this info to my profile. I have figuered out That Tx is treatment and Dx is diagnosis. IMRT has be stumped.
I also want to thank all who participate is this site, as it is becoming a big help to me and my wife. It is also providing info and comfort to my daughters who live in Columbus, Ohio and Poquoson, VA. They think that good old pops will sometimes try to be the tough guy and not let on what is really happening.
Thanks again,
Pete60
SCC lf tonsil. Tx started 03/07/07,39 rads,8 docetaxel & 4 bevacizumab. Re-occured 02/19/08 back of throat. Tx35 rads 8 chemo. Tx started 05/05/08. PEG re-inserted April,2007.
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#22556 03-14-2007 02:17 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | Pete
IMRT is a form of radiation , I dont know the whole term for it . SCC = sqaumous cell carcinoma
BOT = base of tongue
Cisplastin is a form of chemo
Brachytherapy is a form of internal radiation
HBO = hyperbaric oxygen treatment
HMMMMM I can't think of anymore of top of my head ..but keep askin !!! Someone will be able to answer
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#22558 03-14-2007 02:50 PM | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | Gary, here's a list with some referenced links. Pete\ ********************************************* SCC - Squamous Cell Carcinoma Dx - Diagnosis Rx - Prescription Tx - Therapy? Treatment? BOT - Base of tongue PEG - Percutaneous Endoscopic Gastrostomy aka feeding tube http://www.oralcancerfoundation.org/dental/tube_feeding.htm HPV - Human papillomavirus rad - radiation ENT - Ear, nose, throat Doctor aka Otolaryngologist Glossectomy - Removal of tongue Metastasis - Spreading of the cancer XRT - Conventional external beam radiation therapy aka EBT IMRT - Intensity modulated radiation therapy http://www.oralcancerfoundation.org/facts/imrt_radiation.htm PET - Positron emission tomography scan CT/CAT - Co-axial tomography scan EBT - External beam radiation therapy aka XRT OCF - Oral Cancer Foundation NCI - CCC - Comprehensive cancer center or clinic; A tumor board at a cancer center will include doctors trained in different disciplines. Having your case presented and evaluated by this type of multidisciplinary team will give you the best options for treatment, considering all possibilities from their different areas of expertise. http://www.oralcancerfoundation.org/resources/cancer_centers.htm HBO - Hyper-baric oxygen Patient given oxygen under pressure prior to dental surgery. Stage - Development of the cancer http://www.oralcancerfoundation.org/facts/stages_cancer.htm TNM - System for describing the cancer http://www.oralcancerfoundation.org/facts/stages_cancer.htm NCCN - National Comprehensive Cancer Network (an alliance of 20 leading comprehensive cancer centers). http://www.oralcancerfoundation.org/treatment/pdf/head-and-neck.pdf Margins - Refers to the margins of biopsied tissue; clean margins indicate that all the visible cancerous cells were removed. Biopsy - Removal of sample or whole of suspect tissue http://www.oralcancerfoundation.org/facts/detailed_biopsy.htm Xerostomia - Dry mouth resulting from reduced or absent saliva flow RO - Radiological oncologist MO - Medical oncologist DO - Dental oncologist *********************************************
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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#22559 03-15-2007 06:09 AM | Joined: Apr 2006 Posts: 583 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 583 | Thanks for Asking this Pete60.
I was looking for this information long time ago.
Hope all is going well with you.
Take care,
Diane
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 |
Posting on this thread so this moves up to the top. Its not easy for newer people to know all the abbreviations we use around here. Not sure if a newer list is available.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2006 Posts: 720 Likes: 1 | NCI (which was left blank above) = National Cancer Institute, which is the cancer-research arm of the National Institutes of Health.
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
| | | | | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | I'v been trying to find the list I started (and many contributed to) But have not had luck. Perhaps It got relocated. Does anyone know where it went?
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I saved it: Acronyms: BaCC = Basil Cell Carcinoma Biopsy = tissue sample removed for microscopic examination BOT = Base of tongue Brachytherapy = Radiation therapy with internal radioactive �seeds� CAT = Computed Axial Tomography (scan) CCC = Cancer Care Center CT = Computed (computer) Tomography (scan) Dives = treatments in a HBO unit DX = Diagnosis ENT = Ear Nose and Throat Doctor and surgeon FNA = Fine Needle Aspiration � (Needle Biopsy) HBO(T) = Hyperbaric Oxygen Treatments HIPAA = Health Insurance Portability and Accountability Act HN = Head and neck HNC = Head and Neck Cancer HPV = Human Papilloma Virus IMRT = Intensity Modulated Radiation Therapy Met(s) = Metastasis or cancer spread MRI = Magnetic Resonance Imaging (scan) NCCN = National Comprehensive Cancer Network NCI = National Cancer Institiute PCP = Primary Care Physician PEG = Percutaneous Endoscopic Gastronomy (G tube or tube) Feeding PET = Positron Emission Tomography (scan) PT = Physical Therapist QOL = Quality Of Life RND = Radical Neck Dissection (sometimes Resection) also Modified RO = Radiation Oncologist RT = Radiation Therapy also Radiotherapy (Radio) RX = Prescription or treatment SCC(a) = Squamous Cell Carcinoma also SqCCA and sq cell ca TX = Treatment Xerostomia = low saliva XRT = X ray Radiation Therapy _________________________
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Sep 2008 Posts: 489 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2008 Posts: 489 | Thanks David I had been searching for this too.
Patty
48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | I just sent this thread to Chester so he would make it a permanent part of the FAQ's and the New Posters must read forum.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Feb 2009 Posts: 20 Member | | Member
Joined: Feb 2009 Posts: 20 | Thank you, I have been wondering about some of those myself. | | | | | Joined: Mar 2009 Posts: 54 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2009 Posts: 54 | MEC Mucoepidermoid cancer
Sweetpea
********
2/09 MEC Rt Submandibular Gland,Tumor Exc,age 68; 4/09 Rt Neck Resect, Excise Rt Lingual Nerve, 10 nodes; 1 month later- Lge Abscess Drained 5/09; 4 more cancers, final path report; 6/09 IMRTx33
| | | | | Joined: Jul 2009 Posts: 1 Member | | Member
Joined: Jul 2009 Posts: 1 | I'm not sure if this is the place to tell you who I am and what my problem is. Last Thursday I was told by an ENT specialist that I have cancer. I don't know exactly what it is called. It is on my gum and soft tissue under my tongue. I am going for surgery on July 17th and I am scared stiff. I do not know what to expect.
I don't know all of the abreveations yet as I am a newbie.Thank you for listening to me.
Arlene | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Welcoem to OCF Arlene. You will soon get the hang of this forum. There are so many helpful, encouraging members who will help guide you thru this. When you want to start a post its easy. Just go to the topic you and and then click NEW POST. Also under the tab of My Stuff, click on profile and write a few things for a signature. These 2 things will help us to help you. Have you had a second opinion? How was your cancer determined? Biopsy? Did you have a CT or PET scan yet? Dont worry about the abbreviations, you will unfortunately understand them all very very soon. There is so much info here you can read for hours and get quite an education. Just remember, everyone is different. They respond to treatment and medicines at different rates. Also recovery is at ones own pace. You can get a general idea what to expect but its up to you and your body how things go from there. Dont let someone else's story scare you. Prepare for the worst but hope for the best. Take soemone with yoru to appointments to write things down. Ask questions, surgeons operate thats their job. Will you be having radiation and chemo? Who will help you and be your caregiver? Start lining up friends relative and anyone who offers to help. Keep a list, even if they pick up your meds or do a load of laundry it will help. Best of luck, I know you are scared and its ok, we will help
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | greatgam4 If you read the first page of this thread that you are on there are all the abbreviations there to get you started. Print it out so that you can refer to it as all this begins to play our for you. Once you start your own thread of ideas and questions people will find you and continue to follow you, helping as you need it. Start in the introduce yourself forum.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Oct 2008 Posts: 251 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2008 Posts: 251 | BOGUS POST copied from BRIAN'S POST above: #87854 - Sun Jan 11 2009 06:52 PM
Catherine
2mm tumor excised 09/23/2008 (floor of mouth)
SCC (superficially invasive, well-differentiated)
Stage 1, T1N0M0
01/2009 and 01/2010 - PET/CT clear
Four and 1/2 years - NED!
"Detection can be easy, treatment is not!"
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Yep. Little Sir (or Ms) Echo was very busy last night copying posts by Brian, DavidCPA etc and reposting them without attribution. Each and every post is just a paste and copy from a prior one in the thread. Quite juvenile. Not even amusing as some are the original poster's concerns. The key is the profile: zzjo770 is a "seo" which stands for Search Engine Optimization in regular acronyms but more accurately here as Shallow Entertainment Oaf
Charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I deleted him and all his posts earlier today.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2006 Posts: 756 Likes: 1 | David, I bet that felt good! The power you have! That is what is great about OCF -- very little "junk" mail on here, or as I called him a "vermin".
Susan
SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | None of us with THE POWER are here 24/7 so it helps like you all do when you PM me or even quicker, e mail me but that aside the first thing I check when I come on is new posters and I examine their Profile to make sure there are no links, then I read any posts they have made and sometimes I even have to put them on a "Watch Posts" alert.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: May 2011 Posts: 3 Member | | Member
Joined: May 2011 Posts: 3 | IMRT is intensity modulated radiation therapy. It's designed to limit the radiation delivered to healthy tissue, while giving the tumor the full dose. The radiation source is an x-ray beam that can come at the cancer from several different directions, and can have a different shape from each direction, using something called a collimator that is computer controlled to have the same shape as as the tumor. Think an (American) football-shaped tumor: end-on it looks circular, side-on oval. In IMRT the beam would be circular when coming at the tumor end-on, and oval when the beam direction is side on.
KenMc
| | | | | Joined: Apr 2013 Posts: 19 Member | | Member
Joined: Apr 2013 Posts: 19 | nice list, thank you David. what does the letters and numbers mean in a dx? ex: tn3 (just made this up).  debbiejeanne
laryngeal cancer in 8/09. 35 rad tremnts no surgery. Recurrence in 2/12. Complete laryngectomy. 10/12 pet scan, clean ned.
| | | | | Joined: Jun 2013 Posts: 12 Member | | Member
Joined: Jun 2013 Posts: 12 | Hi,
Sorry for my ignorance but I have read many of your stories and see "Ca" in your signature lines. What does this abbreviation mean?
Thanks
Svet | | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 1 |
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 |
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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