| Joined: Mar 2018 Posts: 83 Likes: 1 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Mar 2018 Posts: 83 Likes: 1 | Did you have to have your jaw wired shut after surgery? I googled it, and the images and information was overwhelming and scary. I'm going to avoid google from here on out.
Dad was diagnosed 2/28/18 w Stage 4, N0 Verrucous carcinoma (VC) an uncommon variant of SSC Mandibulectomy and free-flap reconstruction 5/30/18 Diagnosis changed to SSC. Began treatment of 30 rads and 5 Cisplatin Cycles on 7/18/18 Decided not to do any more Cisplatin after the first one. Finished treatment on 8/31/18. 3.19 Abscess & Recurrence wide mouth resection 4.16.19 Scapular Flap Reconstruction surgery 9.6.19 Clear CT! 8.6.20 Clear CT!
| | | | Joined: Mar 2018 Posts: 83 Likes: 1 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Mar 2018 Posts: 83 Likes: 1 | Dad's getting more upset as we near the date. He's started saying stuff like maybe he should kill himself to avoid the surgery. His primary care doctor gave him some anxiety medication, but told him to take it only when he's feeling very anxious. It's making me more worried for the surgery and afterwards. It's been a rough couple of weeks.
Dad was diagnosed 2/28/18 w Stage 4, N0 Verrucous carcinoma (VC) an uncommon variant of SSC Mandibulectomy and free-flap reconstruction 5/30/18 Diagnosis changed to SSC. Began treatment of 30 rads and 5 Cisplatin Cycles on 7/18/18 Decided not to do any more Cisplatin after the first one. Finished treatment on 8/31/18. 3.19 Abscess & Recurrence wide mouth resection 4.16.19 Scapular Flap Reconstruction surgery 9.6.19 Clear CT! 8.6.20 Clear CT!
| | | | Joined: Jun 2013 Posts: 346 Likes: 3 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jun 2013 Posts: 346 Likes: 3 | Talk to your dad's doctor about the anxiety. Depending on what he's been given, it's possible he can take a lot more. I'm on pretty regular anxiety and depression medication, and my very sensible psych upped the doses for some of them during my cancer treatment, because obviously that's going to push the boundaries a LOT! If I can be prescribed as much as I get, you can certainly question if your father can be prescribed more regular or a higher amount dosing. If it's for anxiety or panic attacks, I find that by the time mine break through, they are a lot harder to stop, and it's better to keep them in check up front if possible. Cancer is scary. Might as well go ahead and get the anxiety under control if you can ... enough of the rest feels out of control as it is. I'm NOT a doctor, of course, but I've been dealing with panic attacks for near twenty years now, so I have some experience in this area.  Ask. It is always worth it to ask.
Surgery 5/31/13 Tongue lesion, right side SCC, HPV+, poorly differentiated T1N0 based on biopsy and scan Selective neck dissection 8/27/13, clear nodes 12/2/13 follow-up with concerns 12/3/13 biopsy, surgery, cancer returned 1/8/14 Port installed PEG installed Chemo and rads 2/14/14 halfway through carboplatin/taxotere and rads March '14, Tx done, port out w/ complications, PEG out in June 2017: probable trigeminal neuralgia Fall 2017: HBOT Jan 18: oral surgery
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | As you have found out the hard way, Dr Google is NOT a good source for info! I always advise members to avoid using that. I tell people that if you put in enough info, even an 80 year old man will come up as being pregnant with twins. Of course Im joking!!! I just hate seeing patients and caregivers who already have enough on their shoulders learning from any number of unreliable sources. OCF is one of the few sites certified by Health on the Net to always provide up to date, correct medical advice.
The patients mental health plays a big role in how well they do with surgery and recovery. Im so very sorry your father is upset and talking about suicide! That must be very sad and scary at the same time. If your father is a danger to himself, thats way more than almost all caregivers are able to manage. If you have not notified all of your fathers cancer doctors about this, do so right away. They need to know about your fathers current state of mind and the change in his anxiety meds. Some of those type medicines take weeks until they are completely effective. Your father isnt on something like that, his is a more of a sporadic type of medicine. Sounds to me like your father would benefit from something taken daily even though most of those meds need a few weeks before it kicks in. Tomorrow morning start calling your fathers doctors.
Hang in there!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | Vicky1,
Depression, and even suicide is a major factor with head and neck cancer patients. I once read as far as cancers, suicide was 5th with Head and Neck Cancer patients, but recently read it’s second behind pancreas cancer, but regardless, all threats should be taken seriously. Maybe your father can see a therapist, talk to a friend or minimum tell his doctors!
Some anti-depression medications can even cause these thoughts with certain individuals with no history of this or even with this disease, it did with me. I contemplated this, still have a wrist scar, but attempted several times, other ways, which was all I thought about doing when I was hospitalized for 6 months in 2010, and paralyzed from the waist down or was just so weakened, with no good prognosis. The hospital and staff had no idea either! I told one friend who came to see me, who had convinced me that if i wasn’t successful, I could be permanently harmed, disfigured or paralyzed. That made me think, so at one point, I requested the hospital stop giving me anti-depression meds (only do this by dr request), but I don’t know if this was the cause or not, but haven't had this problem again, even after multiple cancers, but here I am still, cancer free, 9 years later.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Mar 2018 Posts: 83 Likes: 1 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Mar 2018 Posts: 83 Likes: 1 | We found out dad has diabetes today. We also went to a cancer support group at a nearby hospital. I think it bummed him out. It sounded like the three folks who were there have been coming for years. Two of them have terminal cancers of the prostate and of the lungs. They talked about a woman who died since their meeting last week. People cried. He did talk a lot about how angry he is about his diagnosis and how scared he is of the surgery, which might be good.
Dad was diagnosed 2/28/18 w Stage 4, N0 Verrucous carcinoma (VC) an uncommon variant of SSC Mandibulectomy and free-flap reconstruction 5/30/18 Diagnosis changed to SSC. Began treatment of 30 rads and 5 Cisplatin Cycles on 7/18/18 Decided not to do any more Cisplatin after the first one. Finished treatment on 8/31/18. 3.19 Abscess & Recurrence wide mouth resection 4.16.19 Scapular Flap Reconstruction surgery 9.6.19 Clear CT! 8.6.20 Clear CT!
| | | | Joined: Jul 2018 Posts: 5 Member | Member Joined: Jul 2018 Posts: 5 | There really is a great sense of comfort in talking with others who have gone with similar situations. I would make sure his doctor knows he has talked about ending his life. I believe antibiotics might benefit him. I am sure the anxiety meds help but if he is suppose to only take them when things are really bad, that doesn't help him every day. When I went in for my tongue & neck dissection surgery, one of the nurses had part of his jaw bone removed due to Oral Cancer. It was very inspiring to me that he was working as a nurse and had made it through his storm...at least for the most part 
Lori Biopsy 12/2017 microinvasive carcinoma measures 0.25 mm Partial tongue removed & 29 lymph nodes neck dissection Trying to accept my new normal
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