Previous Thread
Next Thread
Print Thread
Just venting #192302
04-26-2016 02:27 PM
04-26-2016 02:27 PM
Joined: Apr 2016
Posts: 66
Massachusetts
M
msweet2995 Offline OP
Supporting Member (50+ posts)
msweet2995  Offline OP
Supporting Member (50+ posts)
M

Joined: Apr 2016
Posts: 66
Massachusetts
I was in a lot of pain this week with radiation fibrosis and no one unless you are in this situation can understand us. I was talking with Brian today and even though I am feeling in a dark place today that I could be so much worse off. I am not an active poster but have been watching the posts since 2005 and then 2009. Hearing about the Hellion makes me sad, so sorry to hear about the lost of another OC person. So please bear with me and forgive me if I am venting about my own pain cause sometimes it can be a lot worse!


SCC 2005 floor of mouth and neck disection
SCC 2009 partial rt tongue RAD
PEG 2009
20 HBO treatments following surgery of three teeth and 10 more HBO to follow
2015 Diced food diet due to weak muscles long term effects of radiation
2018 Radiation Fibrosis of the jaw and neck, vocal cord dysfunction
Re: Just venting [Re: msweet2995] #192303
04-26-2016 04:36 PM
04-26-2016 04:36 PM
Joined: Jun 2007
Posts: 10,346
PA
C
ChristineB Offline

Administrator, Director of Patient Support Services
ChristineB  Offline

Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
C

Joined: Jun 2007
Posts: 10,346
PA
Im so glad you were able to speak with Brian today. Im very sorry I didnt have much time to talk.

Hoping tomorrow brings a much brighter day with less pain.


((((HUGS))))


PS... Its ok to vent. We understand where you are coming from.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Re: Just venting [Re: msweet2995] #192305
04-27-2016 12:33 AM
04-27-2016 12:33 AM
Joined: Mar 2011
Posts: 1,024
New Zealand
T
tamvonk Offline
"OCF Kiwi Down Under"
tamvonk  Offline
"OCF Kiwi Down Under"
Patient Advocate (1000+ posts)
T

Joined: Mar 2011
Posts: 1,024
New Zealand
I'm saddened to hear that you have ongoing pain issues. I'm sure Brian will have given you good advice and hope that you are able to address this issue.
Thinking of you,
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
Re: Just venting [Re: msweet2995] #192307
04-27-2016 06:33 AM
04-27-2016 06:33 AM
Joined: Oct 2012
Posts: 1,102
Toronto, Canada
G
gmcraft Offline

Assistant Admin
gmcraft  Offline

Assistant Admin
Patient Advocate (1000+ posts)
G

Joined: Oct 2012
Posts: 1,102
Toronto, Canada
There is no need to apologize fore venting. We are all here so we can vent, ask questions and get support. Oral cancer is such an awful condition to battle, life would be really miserable if we can't even vent.

I hope your issue gets sorted and you will feel better soon. Having you in my thoughts.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.

Support OCF


Help OCF

Shop Amazon and Help OCF

Top Posters(All Time)
ChristineB 10,346
davidcpa 8,311
Cheryld 5,260
Brian Hill 4,744
Gary 3,552
Newest Members
rajbl, Alex bughis, Pineapple, MST, Ady
12122 Registered Users
Forum Statistics
Forums23
Topics17,537
Posts193,867
Members12,122
Most Online306
Aug 21st, 2016
Brag Box
Powered by UBB.threads™ PHP Forum Software 7.7.1