I was in a lot of pain this week with radiation fibrosis and no one unless you are in this situation can understand us. I was talking with Brian today and even though I am feeling in a dark place today that I could be so much worse off. I am not an active poster but have been watching the posts since 2005 and then 2009. Hearing about the Hellion makes me sad, so sorry to hear about the lost of another OC person. So please bear with me and forgive me if I am venting about my own pain cause sometimes it can be a lot worse!

SCC 2005 floor of mouth and neck disection
SCC 2009 partial rt tongue RAD
PEG 2009
20 HBO treatments following surgery of three teeth and 10 more HBO to follow
2015 Diced food diet due to weak muscles long term effects of radiation
2018 Radiation Fibrosis of the jaw and neck, vocal cord dysfunction