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I only eat red meat on Sundays and that's when I charcoal grill 2 1 lb Ribeyes with tons of marbling for my wife and I. I eat all of mine and she ends up sharing hers with Buddy and Lamont our 2 85 lb rescue Pit mixes.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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Hmmm, this crowd does like its ribeyes!

Cheryl, what shake/smoothie ingredients did you use during treatment? I am looking at hemp powder for protein. Did you use a particular powder? My hope is to transition to an anti-cancer diet long-term. I've been moving in that direction the last few weeks and definitely feel better.



53
T3N2aM0 HPV+
5/26/13 discovered painless superball-sized lymph node in neck
6/26/13 DX SCC R palatine tonsil
7/16/13 TORS tonsillectomy & selective ND, mets to 2 nodes
9/3/13 Cisplatin and rads begin, tolerated 1.5 of 3 planned chemo doses
10/16/13 Treatment ends
Dec 13 Ulcer appears at surgery site
Jan 17 Biopsy -- no cancer!
Feb 17 CT/PET Scan lights up tonsil bed & nasal cavity, docs say probably inflammation, don't panic, rescan when ulcer subsides
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I'm not saying low protein or high protein, but adequate for the persons situation, and calculations, which could be low or normal protein intake, like when already having chronic kidney disease or high intake during illness, healing, exercise. Some may take a suggestion to eat high protein to be sky's the limit, the same with nutition, when excess feeds cancer, so they say, but at the same time, some may need to gain weight on a doctors advise, and just mentioning the other side of the coin, and to look into your needs. Treatment can also compromise kidney function (creatine, GFR) temporarily, and sometimes permanently, and excessive intake of protein can cause other problems with that, breakdown, dehydration, which is already common with Tx. One of the symptoms of protein toxicity, is nausea and vomiting, and ammonia smell. I may have had protein toxicity, i belived so back in '88, from heavy intake of proteins causing an ammonia smell, and ever since, I tried not to take in as much protein. Funny Ed mentioned the pancreas, and years later I developed diabetes, which I thought was related to high protein, exercise, but anyway, diabetes can be related to the pancreas, and now have chronic stage 4 chronic kidney disease from chemo, probably diabetes didn't help. Once the kidneys are damaged, the kidneys usually don't repair itself. unless it's from acute kidney failure, but it's compromise deteriorates your health, and survival.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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All comments posted here are never to be taken as gospel. Every person is unique and every case is unique and the combination makes each patient's journey unique and needs to be evaluated, assessed, and treated based on that specific uniqueness.

If we can no longer post generalities, commonly observed experiences, and needing to qualify every comment for every possible condition and exception, then you may as well just shut down the forum.


Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at http://beatdown.cognacom.com
Joined: Mar 2013
Posts: 421
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Generally speaking, cheesesteaks aside, a healthy low fat diet, one with a good balance of protein, low glycemic carbs, vegetables, fruit, etc. is good for us but seldom followed (raises hand). It makes sense that such a diet is beneficial to our bodies regardless of cancer.

Logically, after cancer, when our systems have been compromised, eating the right foods can aid with our own healing powers and immune systems. There have been some recent studies, albeit small, of diet and cancer. I'm glad to see the medical community looking into this subject. I'm all for healthy eating but knowing how indiscriminate cancer is, I believe diet alone cannot influence the beast one way or another.

We should all try to eat healthy, regardless of cancer. Perhaps it's the wording. Anti cancer? What about "anti bad health"?

"T"



57
Cardiac bypass 11/07
Cardiac stents 10/2012
Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+
Palatine Tonsillectomy/Biopsies 12-21-12
Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13
Emergency Surgery/Bleeding 2/18/13
3/13/2013 30rads/6chemo
Finished Tx 4/24/13
NED Since
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I agree, Don. You should follow your own rules, and don't ask for any studies, peer reviews, proof of anything or argue an opinion, which you often do. FYI, my comment wasn't necessarily directed at you, it could have been anyone, and it was just the words, "eat high protein", which is often posted, and most likely true, important, and I agree with, but maybe not for everyone or all the time, and amount may vary in everyone, at different times, and should be calculated, and just bringing out that information and the "cons" of doing so, especially that it may increase dehydration, so one should look into that. In your post it was "Heavy Protein" which sounded more than high? Ed mentioned an amount while heavy exercising, 1gram of protein for every pound of body weight, which is not often mentioned, along with eat high protein, and think the amount is important, different in everyone, Half that, If moderate or none, etc. The FDA daily requirement amount is different to. I have seen numbers for cancer patients and recovery from surgery more towards the 1 to 1, but don't recall exactly off hand. This wasn't the first time I mentioned it on other posts, so don't take it personally.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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I have a 400 lb very short aunt that eats fast foods primarily. Her cholesterol is 125, triglycerides 90. It is more proof that every one of us are unique. Monitoring cholesterol and bp is a good thing for anyone to do as it shows how the body is processing things. What I call "lifestyle" drugs to help these only makes the problem with a crutch, in my opinion. Aerobic exercise is not always possible but helps as does high fiber...as does protein, provided the body processes it well. After chemo and radiation almost all rules became confusing as the body is in a fight for life trying to figure out what that toxicity introduced really is and how to regulate it while protecting the body.

I think all of us (hand raised very high) determines what works best for us and wants others to do it too since it worked. The point of sharing this is to merely give a starting point to which we should adjust based on blood tests and personal experiences. If I can sit down and shut up about water...we should all not take it personally! What works for one may not work for any let alone all.

If I challenge you on something it is not to say you are wrong or I am right. It is to say check this out, try and find a way to measure it and keep on keeping on.

I have had many friends get into some type of weight training at a later point in life and in the 80's it was all about protein. I saw many of them with pancreatitis because they were having protein shakes in excess. Most of them are diabetic, Type I or II and some have gone from pancreatic cancer. Was it the whey? We will never know. They should have had blood tests done to measure digestive enzymes earlier. That much I believe but I will never know. Excess bile, abdominal pain in the center or upper right quadrant are signs something is wrong with the liver, pancreas or gall bladder.

Just find what works, find a measurement and keep doing what improves your health.

Ed


SCC Stage IV
BOT primary
T2N2bM0
Cisplatin/5FU x 3
40 days radiation at 4 sites
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
PLS 02/13
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/
Osteoporosis 01/2018
Heart attack 06_2018

Living life LARGE with no quit in this guy!
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Cheesteaks do rule, too, by the way!

I have my own creation...the Seoul Cheesteak! I marinate shaved ribeye in kalbi (Korean BBQ) then I caramelized onions in olive oil or coconut oil, add some jalapeņos for the bell pepper taste, add in some sliced button mushrooms and then the beef with stinky feet provolone on top. I had to quit toasting the buns because toast collects in the throat pockets and the choking while eating becomes a choking all day afterwards. I scoop it on and enjoy the heck out of.

I saw on TV a study about walking 15 minutes after meals to prevent diabetes and to process fats and carbs better so I do that after 2 ribeye sammies. Don't know if it works but that's my story and I'm sticking to it.

Don, I try and healthify my sukiyaki too. I switch to tofu shirataki instead of yam threads for a tad more protein and less carbs, low sodium soy for my wife and I use organic raw eggs to dip the stuff in...Japanese style! I use the family tradition of at least 5 green leafy veggies too. For all red meat our rule is green leafy veggies with the meal.

Soy protein....the "imitation estrogen". Men should limit soy protein as it reduces testosterone production. I used to make my own tofu so I knew what goes into it and I used the pulp to create my own okara burgers. As my energy grows I may have to go back to that.

Gotta go...eat now! YUMMY!


SCC Stage IV
BOT primary
T2N2bM0
Cisplatin/5FU x 3
40 days radiation at 4 sites
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
PLS 02/13
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/
Osteoporosis 01/2018
Heart attack 06_2018

Living life LARGE with no quit in this guy!
Joined: Dec 2003
Posts: 2,606
Likes: 1
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Well that long winded post disappearing sucks! Maybe I will reconstruct later. I guess I used up my verbiage for the day.


SCC Stage IV
BOT primary
T2N2bM0
Cisplatin/5FU x 3
40 days radiation at 4 sites
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
PLS 02/13
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/
Osteoporosis 01/2018
Heart attack 06_2018

Living life LARGE with no quit in this guy!
Joined: Dec 2003
Posts: 2,606
Likes: 1
Patient Advocate (old timer, 2000 posts)
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Cheesesteaks rule! My version uses kalbi (Korean BBQ) marinade. I caramelize the onions in olive oil or coconut oil, add in some jalapeņos for the bell pepper flavor, the marinated ribeye and after cooking I add some stinky feet provolone. I stopped toasting the bun since the dry toast makes my coughing during the meal an all day event with chunks of bread crumbs coming nonstop. I call it the Seoul Cheesesteak.

I saw on national news some studies that said walking 15 minutes uses after eating fat foods or high starch foods helps the body prevent Type II and maybe Type I diabetes. I figure it must balance the sins!

Don, I healthify my sukiyaki by replacing the shirataki with a tofu version. Our Japanese family tradition is to add a minimum of 5 green leafy veggies to it too. Our rule is all red meat should be followed with green leafy veggies. I used to make my own tofu so I know what goes in it. I use the leftover pulp to make my version of okara burgers with carrots, onions and spices.

I try to limit soy proteins because of the "imitation estrogen" effect on males. It effectively lowers testosterone.


SCC Stage IV
BOT primary
T2N2bM0
Cisplatin/5FU x 3
40 days radiation at 4 sites
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
PLS 02/13
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/
Osteoporosis 01/2018
Heart attack 06_2018

Living life LARGE with no quit in this guy!
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