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Joined: Jul 2012
Posts: 50
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Jul 2012
Posts: 50
Recently everything, well almost everything, in my life has returned to normal. I'm even doing theater again and one of my all time favorite bands is playing a show locally (which in and of itself is serendipitous considering if you knew the band they should have come here while I was down and out, it's almost like they waited) and I'm doing amazing at my job. But I have these catastrophic moments of impending doom and I feel like how far can I go back into life before something pulls the plug like last time. And part of me feels like I'm trying to do everything all at once because I know if it ever comes back my life will be shutdown, if not for a substantial amount of time, forever.
I didn't think it would be this hard to cope or that I'd need to cope as my life turned back into what it once was


Large sore on right side tongue. Had for 3 mos. biopsied came back stage 2 well differentiated tongue cancer. Partial tongue removal and neck disect. On feb142012. Rads for 6weeks finished in June. Couldn't speak or eat for 5 months. Clear pet scan dec 2012. Former smoker hpv- 27male. Recent ENT visit said "as far as I can tell you're cured" 💗
Joined: Jan 2013
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Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Jan 2013
Posts: 1,294
Likes: 1
Glad you posted and recognize the symptoms that can be treated. Check out the local cancer wellness groups. They have meetings where you can have a peer group discussing similar reentry challenges. Good luck. don


Don
Male, 1955
Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
Joined: Dec 2010
Posts: 5,264
Likes: 5
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,264
Likes: 5
It's very common to feel that way. It's almost like a momentary panic attack. They do eventually get fewer as you get further away from treatment and with each consecutive clear scan. Just remind yourself to enjoy your life and live it to the fullest, because like everyone else on this planet you never know what will happen tomorrow. Congrats on the scan!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: Jan 2009
Posts: 1,844
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Jan 2009
Posts: 1,844
That's why we have support groups my friend. After our experience we are opened up to the reality that life could change or end at any minute and that reality is hard to cope with. Personally I don't think anyone can do it alone, nor should they try. Plug into the boards or a local support group and share these feelings to get them out, then you can face them with help. There is strength in numbers.

I often run myself into the ground trying to do too much and my friends keep telling me that I need to pace myself, and I do, however I have these same feelings and just feel like running while I can. Thanks for sharing, I believe you help others who wouldn't normally be able to put the same feelings into words when you do and let them know there are others out there that have the same fears.

Keep your chin up, you're doing awesome.

Eric


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
Joined: Jul 2012
Posts: 50
Supporting Member (50+ posts)
OP Offline
Supporting Member (50+ posts)

Joined: Jul 2012
Posts: 50
I think it's the weekends especially that are the hardest. During the week I don't have much time to think about anything but work and the musical I'm in. And it's so close to the anniversary of my operation. While everyone is celebrating valentines day I'll be remembering that day that was beginning of everything changing. It's just terrible. But I have to remind myself that no one's tomorrow is guaranteed. And that I had a pretty good case as far as cancer is concerned. And the radiation was an insurance policy.


Large sore on right side tongue. Had for 3 mos. biopsied came back stage 2 well differentiated tongue cancer. Partial tongue removal and neck disect. On feb142012. Rads for 6weeks finished in June. Couldn't speak or eat for 5 months. Clear pet scan dec 2012. Former smoker hpv- 27male. Recent ENT visit said "as far as I can tell you're cured" 💗
Joined: Jul 2012
Posts: 3,267
Likes: 4
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 3,267
Likes: 4
Keep busy, and as mentioned, join a support group or get counseling. Certain historic dates do bring back memories, good and bad, like diagnosis date, and NED. Try to think the more positives ones like the clear scan, clear margins, you quit smoking, and you have the rest of your life to look forward to at age 26.

If you are close to NYC there are three H&N cancer support groups, and one in Long Island, that I know about.

Good luck.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs







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