| | Joined: Aug 2010 Posts: 72 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2010 Posts: 72 | I knew the subject line would grab you  The Huffington Post has an article on the University of North Florida student paper where they have a cover story on HPV and oral/throat cancer. The paper got in lots of trouble, but the controversy is getting the word out. The link was featured on AOL today. You can find the article and a video from the local news by going to the Huffington Post site and searching on University of North Florida Oral Sex.
Susan, CG to husband, diagnosed April 2010, age 56, non-smoker, no HPV
Mandibulectomy on left side May 2010 followed by 30 radiation, 3 cisplatin treatments.
| | | | | Joined: Jan 2011 Posts: 25 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jan 2011 Posts: 25 | Susan, I checked it out and well, wow, um, it's rather shocking...it certainly will get attention and I'm sure more people will know about HPV in relation to oral cancer. Eric S...is that you I hear laughing? Yvonne
Age 35
Superficial SCC lateral tongue
HPV(-), nonsmoker
Right lateral tongue resection 1/17/11 w/ Alloderm Graft
Proud mother of 2
Enjoy walking/aerobic kickboxing
Pittsburgh Steelers Fan! (#86)
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Actually Yvonne, it's me you hear applauding! I would find the person responsible for choosing the photo and give them a job because that person "gets" how to grab attention which is key in publishing and marketing. Let's face it, cancer is a word that you bring up that most people will just chalk up as a scare tactic. Our society is desensititized (sp) and even when there is alarming news most people will miss it due to being constantly bombarded by such messages. A quick example is the dentist in Elizabeths interview not knowing the facts about the #1 cause of OC..and that person "should" know. How many people will read that article now because of an "offensive" photo? More then without it I'll wager. 
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Anything that raises awareness....
Aren't we as a society just ridiculous sometimes? Facebook can allow video posts of teenage girls beating the hell out of another girl that goes on for 10 minutes and they can allow video of gruesome dog fights and on and on but they think they must morally take down a picture of something that has been done (and will continue to be done) for 1000's of years.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Hurray for the Huffington Post and the college student who cared enough to raise much needed awareness about oral cancer! Sometimes you have to shock people to get them to see what's right before their eyes. I agree with Eric that more people will read the article (not just look at the pic) because of the "offensive" photo (actually very "tastefully" done). Now someone needs to raise awareness for the middle school crowd and the parents who think they are keeping their children "chaste" by not discussing oral sex and opting to keep their kids out of sex education classes.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Jul 2009 Posts: 1,409 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 Likes: 1 | What Anne-Marie, Eric and David CPA said.
d2
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Mar 2002 Posts: 4,918 Likes: 71 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 71 | Sometimes it takes shock to raise attention. You have to do, what you have to do, to get the job done. By the by, as usual OCF reported this story earlier.... for those that follow our news feed. http://oralcancernews.org/wp/facebook-deems-unf-paper-cover-photo-a-violation/
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | I suppose we could say "Shock and Awe" and by the time a young person reaches college age, they do need the shock and awe that will get their attention which could save their lives. I have grandchildren nearing puberty (3 boys, 1 girl) and I know that whether or not children get sex education in school, they will get the info from each other and it may not always be accurate nor up-to-date regarding oral cancer and may not always be sensitive to one's family values. There seems to be an epidemic of oral sex in middle school children - with young girls thinking they are practicing "safe sex"! Thank you, Brian and OCF for always being on top of the latest in Oral Cancer.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Nov 2009 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 493 | They also seem to think that oral sex really isn't sex. I am a (just retired - yea!) library director and we caught a teenaged couple in the mens' room. (How romantic)and the girl said that they weren't having sex. My staff member who was on duty that night didn't actually witness it, but she could hear them, and told me that while she didn't actually see it, she had been married 30 years, and she knew what it sounded like!
Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
| | | | | Joined: Aug 2010 Posts: 72 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2010 Posts: 72 | Anne-Marie,
Have your grandchildern had their Gardasil shots?
Susan, CG to husband, diagnosed April 2010, age 56, non-smoker, no HPV
Mandibulectomy on left side May 2010 followed by 30 radiation, 3 cisplatin treatments.
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Susan - I know that my son Paul, whose daughter who is 10 right now has plans for the Gardasil shots. Because my other grandchildren (boys) are 12, 11 and 9, your question prompted me to search OCF's site for information on Gardasil which yielded this: http://oralcancernews.org/wp/cancer-vaccinations-for-boys-by-2012/It is noted that "Gardasil is approved in Australia for use in boys and men aged nine to 26." I hadn't realized that boys could get the Gardasil shot as soon as age 9 but will certainly bring this up again with my daughter who has the 11 and 9 year old boys and my other son who has the 12 year old. Thanks for your question, Susan!
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Apr 2011 Posts: 1 Member | | Member
Joined: Apr 2011 Posts: 1 | I suppose we could say "Shock and Awe" and by the time a young person reaches college age, they do need the shock and awe that will get their attention which could save their lives. | | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | The only scandal IMO is that Gardisil is not routinely given to boys and girls. At Elizabeth's neighbor's bar-g-que after her fantastic San Antonio walk, I had the opportunity to talk with her child's third grade teacher's boyfriend who did not know guys should and could get this vaccination.
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
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