| Joined: Nov 2009 Posts: 493 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Nov 2009 Posts: 493 | Hi, Everybody, I have been wondering the same thing myself. I never smoked in my life, they ran an HPV test on me when I had my surgery, and that was negative, and my drinking was a glass of wine when I would be watching TV in the evening or reading - I would also have a margarita when my husband and I went to a Mexican restaurant. Now that I am (slowly)recovering, I am almost afraid to even have one glass of wine. I even hesitated about the communion wine in church.
Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
| | | | Joined: Jun 2007 Posts: 595 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2007 Posts: 595 | Hi, I just had my 26 month check-up and as at every visit they asked if I had drank any alcohol, their thoughts are that we should not give the BEAST any excuse to return. They have stated that they connot prove 100% that a drink now and then is harmful after Tx, but neither can they say that it wont hurt either, so they would rather I not dink any alcohol at all!! Hope this adds a little more info for you. Semper-Fi Bob
Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Bob. how did the check up go??
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | Everybody should keep in mind that it's not the consumption of the alcohol that's dangerous, it's the irritation that it causes to the head-neck cells that does the damage.
I once asked an oral surgeon if that meant that from a cancer perspective, shooting alcohol directly into my veins would be OK as compared to putting it in my mouth. He said that was a strange way to look at it, but yes, avoiding the mouth is the way to go. Little did either of us know that putting it in my PEG would be a choice in my future!
Don't overlook avoiding mouthwashes with alcohol -- You get all the bad effects with none of the good effects <g>.
I personally believe that alcohol was a key factor in my OC because I stopped smoking 25 years before I stopped drinking.
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,409 | An interesting topic indeed. My RO has been adamant that I not drink alcohol. A glass of champagne on new year's maybe but that's it. She maintains that the cancer and/or RT have made me more susceptible to re-occurence, this despite the fact that mine was most likely an HPV-caused primary. She is in my opinion a fantastic doctor and I trust her implicitly. However the MO I saw intially was of the opinion that I could drink in moderation if I felt like it. Since I ended up not needing chemo I only saw him a few times so didn't get more clarification. He's also a brilliant guy and a professor at UCLA. I've been erring on the side of caution. But maybe it's time to rethink? D2
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | I was never (well at least since my 30's or 40's lol) a big drinker but I did walk around with a mouthfull of Lysterine every morning for at least 1/2 hour before I spit it out and I thought that numbing feeling in my mouth was good. I can't dismiss it as a possible link to my OC.
Re the drinking, all of my docs at Moffitt think moderation is fine. I maybe have a beer or 2 a month now. Maybe I'll have a couple tonight with Jerry and his son. He doesn't know it yet but I plan on trying to drag his butt to our Waterfront District after dinner tonight.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2009 Posts: 1,844 | I was not a big drinker as it caused patches of eczema and I generally reacted poorly to alcohol and I never smoked or chewed. I also came up HPV neg...so really I'm of the mind that life's too short anyway to spend my time worrying about whether anything I do will bring this crap back. I certainly avoided the 3 major risk factors before and still ended up with it. I say drink up and enjoy life while you can my dear and don't take it too seriously because nobody gets out alive anyway! This topic actually reminds me of a Mark Twain quote: "The only way to keep your health is to eat what you don't want, drink what you don't like, and do what you'd rather not." I lived like this and still drew the short straw  C'est la vie. Bottoms Up! Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Seda, In AA we would have called you a "normie". I know a fair amount of OC survivors that have an occasional drink. Probably not a major risk factor, at least if you wait until all of your tissues are healed.
I can't drink because I have HCV on top of it. One drink will throw my STOG levels over a cliff...
Needless to say I have not had a drink in 15 years and I don't miss it.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | EricS
well, I raised a glass of wine to Toast your becoming an official "Above & Beyond" member (you have always gone above and beyond in my estimation) in front of my new fire pit last night.
Gary Well HCV was a new acronym for me. No one can argue that given the effect of Hepatitis C virus on the liver, there is no such thing as a "moderate amount" of alcohol for HCV patients. You are a real trouper to endure both cancer and HCV 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2009 Posts: 701 Likes: 1 | Clark tried alcohol on a few occasions but found that it burned his mouth and the taste was altered. As a result, he has lost interest in anything alcoholic. A vanilla milkshake is his preferred "vice".
Anita (68) CG to husband, Clark, 79, DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08, HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft. Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear, PEG out 1/11. 6/11 non union jaw fracture Fractured jaw w/surgery 7/14 Aspiration pneumonia 7/21, 10/22 PEG 7/21 Botox injections
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