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#113760 03-08-2010 06:25 PM
Joined: Jul 2008
Posts: 507
DonB Offline OP
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Jul 2008
Posts: 507
Last Saturday we had our Monthly H&N support group meeting. The guest speaker was a woman from the State who handles patient care complaint investigation. She had taught nursing for many year and had quite a resume.

It was really quite informative and she stressed that we should appeal anything that our Insurance denies because over 90% of the time they will pay it on appeal if it is medically necessary and in California this should include medically necessary dental.

She pasted out info on how to contact 'Patient Advocacy'.

Next month are Cancer Nutritionist.

In two month we are have a Radiation Oncologist from the Scripps Clinic Cancer Center. I hope he is ready for one of our normal three hour Q&A sessions.


Don
TXN2bM0 Stage IVa SCC-Occult Primary
FNA 6/6/08-SCC in node<2cm
PET/CT 6/19/08-SCC in 2nd node<1cm
HiRes CT 6/21/08
Exploratory,Tonsillectomy(benign),Right SND 6/23/08
PEG 7/3/08-11/6/08
35 TomoTherapy 7/16/08-9/04/08 No Chemo
Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11

DonB #113770 03-08-2010 08:24 PM
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
Don , I find this post highly interesting. This area would be hard pressed to have a support group unless we could get the Ohio Valley involved. Good idea for sure tho. I know there are many in the valley but getting them interested might be a full time job.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #113792 03-09-2010 09:05 AM
Joined: Nov 2009
Posts: 493
Platinum Member (300+ posts)
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Joined: Nov 2009
Posts: 493
We are in a small community,as well, Jim. Although even a general support group for cancer patients/survivors would be helpful. I have spoken with a number of folks who have other types of cancer, and it is surprising how many of us have gone through the same thing.


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
zengalib #114039 03-13-2010 07:12 AM
Joined: Nov 2009
Posts: 396
Platinum Member (300+ posts)
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Platinum Member (300+ posts)

Joined: Nov 2009
Posts: 396
interesting....


Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10

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