Is it normal for that little thing that habgs down your throat to swell during treatment? OMG, I keep thinking something it stuck in my throat, well there is and I can not get rid of it. That stupid thing is so big I can feel ti touching my tongue. It is red abd blistery. No wonder it hurts to swallow. How do I get rid of the swelling so I do not gag? It is the most annoying thing about this treatment so far. I am sure it will get worse. Anyone have any remedies???

As far as I can remember you are the first on this site to mention that....figures. lol

I'm sure it's in the radiation field and that's probably why it's having that reaction. What does your RO say? or have you had a chance to ask yet?

Angela:

Tell your doctors about it and see what they say. Mine did something like that, off and on, during and after my treatments (tonsil SCC radiation/chemo treatments finished January 2008). Since then, it sometimes feels like it has gotten longer and does actually hang down and rub my tongue (yuk). I was told to eat a lot of ice cream.

It just showed up this morning. My Doctor's did tell me I am in that "weird subgroup of people" leave it to me to get some side-effect that no one else has had.

Consider me in that "weird subgroup" because even now, after 2 years, I still have symptoms most people have long gotten over after radiation/chemo. I keep going from one doctor to another to be sure they are chemo/radiation related, and so far, they seem to be. I even had my gall bladder removed last week, and it appears that was for nothing. I have excess mucus in my mouth all the time and it has a horrible taste (excuse me, snotty, yuk). Now, an allergist seems to think I have some sort of allergy. Go figure.
Julieann

All I can do is laugh at the posts you put up. I have been trying to keep these lips from flapping as they usually do. I am not laughing but really feel bad for you 2. I get weird things going on too.

You made me smile. it is crazy isnt it?

lol, I must be in that "weird subgroup" too. Angelia, because we are about the same amount along and I have that same thing. Something at the top of my throat is acting like there is a pill or something stuck in there. It's starting to hurt worse and worse to swallow. And now I don't even have a PEG tube. I think only a "weird subgroup" has their PEG tube come out of their stomach and wander around so they have to have the tube removed. I still don't know when they'll put it back in. And they can't put it in through the mouth again, so it will be surgery. I hope that doesn't completely undo my radiation and chemo schedule. I was coming right along - 13 down.

Bloop,

During my hospital stay after my initial surgery my jaw was wired shut however I still had my PEG in. The nurses didn't like where I kept my tube taped so they would pull it to the other side to shoot up meds or food. They eventually pulled it out of my stomach.

They tried to put it back in immediately without success so they shipped me down to xray to get a good pic for replacement. They then had a 2nd or 3rd year resident reinsert it...he needed to cut and I wasn't given a local or any pain meds by this genius. If my jaw weren't wired shut and the nurses weren't holding me down he would've had the beating of his life, verbally and physically.

Make sure they know to sedate and give you pain meds or at least a local.