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Nancy T #107403 11-19-2009 05:26 PM
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Jim, you are always in my thoughts.

Karen xx


46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
Nancy T #107531 11-21-2009 12:06 AM
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Okay Jim - you've had a couple of days off - time to post an update and let us know how you are doing. We are praying that you get some pain relief. We miss you. Write soon.

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
Pandora99 #107537 11-21-2009 02:39 AM
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Jim, just want you to know you are still in my thought and prayers. Yes, I get teary-eyed reading through these posts. You are a very special person and have made a huge impact on my life. Look forward to you posting again.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
ESikon #107546 11-21-2009 08:06 AM
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Jim--All of my prayers and hope of good luck are thrown your way!!

Be strong...


7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
Ray1971 #107554 11-21-2009 02:11 PM
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Jim,

I dont come here as often as I used to and very rarely post. Even though we are not as close as you and others here I have certainly watched everything you have been going through. Please just keep trusting in the good Lord above and He will be there every step of the way for you buddy.

Billy


Dx Mar 07 with Base Of Tongue Stage IV. IMRT 35x with 3 doses Cysplatin ran concurrent. Tx ended May 31,07. Left and right node involved. Radical neck disection 7/18/07
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"OCF across the pond"
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Jim, i hadn't been here for a while. I was shocked to hear it was back. I am sending my prayers and wishes from across the pond. I do enjoy your funny wise and down to earth posts, actually your wise words often kicked me back into gear. I read you are going to move with your daughter. That sounds good. Family are so important. And you have the kiddies to distract you as well.
keep us updated I wish you all the best.


Girlfriend to Martin 49 years old at diagnosis
Diagnosed with SCC unknown primary June 2008.
Cancer found in single node Stage N2A (3 to 6cm).
Tonsilectomy 16th june, Radical modified neck dissection left side 30th june.
30 TX radiotherapy ended 9th October
First comparative study scan came back clear
Cecilia #107557 11-21-2009 03:42 PM
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Jim - you are a very special person, and all my prayers are for your recovery. I think you have a special place in everyone's heart here.


Ginny M. SCC of Left lateral tongue Dx 04/06,Surgery MDACC 05/11/06: Partial glossectomy with selective neck dissection. T1N0M0 - no radiation. Phase III clinical trial ("EPOC" trial)04/07 thru 04/08 because tests showed a 65% chance of recurrence. 10 Year Survivor!
Me2 #107573 11-22-2009 01:41 AM
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Posts: 132
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Jim, There's not much I can say that hasn't already been said. We do love your humour and the positive attitude that shines through all your posts, especially considering all that you have been through. You are truly an inspiration and I hope and feel confident that you can win this newest battle!

((((Sue)))))

Last edited by Sue G; 11-22-2009 01:42 AM. Reason: typo

55 y/o
SCC LL Tongue 3/27/07
Part. mandibulectomy 9/2/07
Left ND 5/12/08
RT/Chemo
Rec LL Tongue 07/09
Part gloss 8/5 & 8/25
Surg 10/28/09 re mets to R neck & L jaw
RT & Chemo finished 12/22/09
PEG fitted 05/06/10
L buccal SCC 10/10
freeflap (forearm)surgery 2/28/11 L buccal and gingiva
Sue G #107574 11-22-2009 04:41 AM
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Jim,
Moving in with your family will be great medicine for you. There is nothing to compare to the love of a grandchild.


SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
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Malka #107582 11-22-2009 12:16 PM
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Jim,

Since finding this site, I quickly identified you as one of my heroes. I'll tell you that this surgery is tough, I did have my jaw replaced with my fibula and also had flap done with tissue from around my fibula. It changes some things but all in all I'll say it's not so bad....much better then the alternative.

Stay strong my friend, my heart goes out to you. Use your strength and stubborness to beat this shit into submission my friend.

Your friend and fellow Frack!

Eric


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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