Hello Nancy
I am so sorry you are facing this difficult journey. I think it is a good thing for you to connect with hospice as they should be able to provide good symptom control and support for both of you in the days ahead. This is their area of expertise. Your husband should not have to endure pain, get after his doctors to order some stronger pain medication until you get hospice set up. As you have read above not all OC deaths are horrific and good symptom management goes a long way in making a difficult situation bearable. My husband had a peaceful death 3 weeks after being told his cancer had recurred with the help of our family physician, visiting nurses, pharmacy and my family. We were able to care for him at home. You will need good support from family and friends to help ease the load and give you a break. Of course use this forum as often as you need it to vent and seek emotional support, it is an invaluable resource. PM me any time if you wish.


Caregiver to husband Dx. Stage 4 SCC of gingiva with 3 nodes pos. Partial mandiblectomy with bone graft from iliac crest Dec. 2006. IMRT x30, Cisplatin x3. Completed Tx. March 15, 2007. Osteonecrosis & removal of graft & plate Oct. 2007. Recurrence of SCC Dec. 2007. Deceased Jan. 17, 2008.