 Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Well Nancy,, the best thing is not to think about death and take your hubby and go to A CCC and see some that understand and know how to be very agressive treating this. I was treated agressively and evne put in a coma for a few days so they could put rad seed implants in my tongue,, Make all of the calls you have to , but get to a CCC and very soon so they can help in this situation. You are in my prayers.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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