 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Liz,
I'm sure everyone promotes the type of treatment they rec'd especially when it works but I also have read hundreds and hundreds of negative posts re ND's dealing with post surgery complications some posting years after their surgery about neck cramps, stiffness and life altering complications. So when I'm told by Moffitt, one of the top 10 CCC's in the U.S. and by one of the county's leading RO's that (in my case) he recommends the concurrent radiation/chemo first and no ND knowing that 3 doctors before him did recommend a ND and he tells me that Moffitt's experience has shown that the patient fares better with this approach and couple that with all the negative posts of people that did have one, I try to tell people my story and suggest they should get a 2nd opinion by a CCC. In Elizabeth's case she had already had multiple opinions and has been seen by a CCC but I still felt I needed to share my thoughts.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| 
