Elizabeth,

I know MDA has a great history but I also think you may benefit from a second opinion from another CCC. For one, I don't see the need for a ND, especially if they are recommending chemo and radiation. Being on this site for 3 years now I continue to see what I call (I'm a CPA not a doctor now) unnecessary ND's and I see a ton of those patients have long term issues because of that surgery. I saw 5 doctors and 3 recommended a ND and Moffitt told me that they didn't think I would need one because the radiation/chemo would do the trick. They did tell me that they could always do the ND post Tx if it was as successful as they thought. I am coming up on 3 years post Tx and everytime I read about someone almost bragging about an all clear ND or post ND issues I thank Moffitt. I see more ND's before someone is seen by a CCC so I guess I'm a little surprised by MDA's recommendation. Perhaps they are dead on( chances are) but it is your life and you are so young so would it hurt to have their recommendations reviewed by another CCC?

David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.