 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Eileen and others,
I would never advocate not doing anything that was medically necessary. My only point is to do your homework, do your due diligence and make sure that what is recommended for you is needed. Certainly err on the side of being conservative when your life is at risk but do try and make sure you need the treatment recommended. ENT's are surgeons so guess what they are going to recommend? That's why I always tell people to get to a CCC, if at all possible, and have a team evaluation.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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